THE ARCHIVE
Welcome to our Non-Profit’s Klinefelter syndrome blog series. We are dedicated to giving people all over the world a safe space to share their stories. Living With XXY is changing the way the world views Klinefelter syndrome (47 XXY). Our community is growing fast as people focus on spreading awareness and learn to focus on the positive traits. Our Klinefelter syndrome blog series offers a wide rage of stories and information. Every week we launch a new story from families experiencing prenatal diagnosis, to parents finding out during the adolescences years, to men finding out after 18 years of age. Please celebrate these incredible stories with us and we hope you will one day feel empowered to share your own.
Optimistic XXY Mindset
People often ask how I live with the mindset to be an optimistic XXY knowing that I have [...]
Melissa felt “pretty hysterical” when given the news.
Written By: Chelsea Castonguay Melissa and her family live in New York state. She and her husband Ryan [...]
Spanish Mother’s 47 XXY Story
English translation from Spanish. It has been many years since I wrote this message in a forum about [...]
Your Quarterly Newsletter: April 2021
Welcome Home! It’s hard to believe 2021 is soaring by so fast! We’ve been busy and we [...]
Julian is going to be the best baby!
Written By: Chelsea Castonguay Sarah Winner is a mother whose son was diagnosed with Klinefelter Syndrome while she was [...]
A Mother’s Intuition Led to Her Son’s Diagnosis
Written By: Chelsea Castonguay A couple of weeks ago I had the opportunity to sit down with Jaime [...]
The Voice of Jordan Truax
Written By: Chelsea Castonguay Jordan is a 29-year-old man living in Hughesville, Pennsylvania. While currently experiencing unemployment due [...]
The Voice of J.
Written By: Chelsea Castonguay J is a man in his late seventies years who resides in the UK. [...]
The Voice of Drew Gagnon
Written By: Chelsea Castonguay When he was a young boy, Drew knew what he wanted to do with [...]
The Voice of Alex H.
Written By: Chelsea Castonguay Alex is a 34-year-old man with Klinefelter Syndrome living in Centennial, Colorado. He’s a [...]
I was Googling every chance I got!
Written By: An Australian Mother I had to arrange my 13 weeks scan privately and Sydney UltraSound for [...]
Struggle to be a father due to an extra X chromosome
A man who only discovered he had Klinefelter syndrome when he and his wife failed to conceive naturally. [...]
Fears Are Changing Into a Community of Hope
The negatives, stereotypes, limitations, fears and the stigma. We asked the community to share the FAQ they receive [...]
Our Annual Letter for 2020
Dear Living With XXY Community, Let's go back to November 6th, 2019: Living with XXY was born, as [...]
XXYKindaGuy Sam Pierce
XXYKindaGuy: Klinefelter syndrome diagnosis a relief after childhood woes. February 16, 2018 The Courier News Letter Samuel Pierce [...]
After 6 Years of IVF Our Journey Began
Written by: A Mother in Australia Our journey began after 6 years of IVF. I had decided not [...]
Facing Uncertainty
Motherhood is Tough. It hasn’t been easy for me. The caring, nurturing, looking after has been a breeze, [...]
“This Might Be Me”
"This Might Be Me" - JT's story Written By: Chelsea Castonguay in collaboration with JT and his wife. [...]
Marathon Baby by Cedars-Sinai Magazine
Marathon Baby Feb 26, 2020 Amy Paturel, Photos by Ted Catanzaro Original Article - Here Fueled by the power [...]
The hope of fathering children snatched away at 20.
Original Article by Bourn Hall Fertility Clinic When Fraser was diagnosed with Klinefelter Syndrome, it was possible he [...]
The Diagnosis of an Extra X Chromosome Helped Mathew Find Himself
This article was written by Children’s Hospital Colorado In a tunnel beneath Willow Park Drive in Parker, Colorado, along [...]
A New Zealand mother and her XXY Kid
I am writing this from a mother's perspective, my son Noah is aged 5 and is an XXY [...]
Colton’s XXXtraordinary Cause: Hope out of Hardship; A Rare Affair Indeed
There is perhaps no more remarkable moment in our lives than -if we are lucky enough- the experience [...]
Klinefelter Syndrome Genotype
Another amazing story about a baby with Klinefelter syndrome here This is my 6-week-old son. He is a [...]
Klinefelter Diagnosis: Stefan Schwarz
My name is Stefan Schwarz. I have Klinefelter Syndrome, XY/XXY mosaic, and found out in February 1996 at the [...]
XXY Early Diagnosis Signs
How did we miss this? One family looks back at the “soft signs” of XXY that were overlooked in [...]
My first time telling people my son has XXY.
Sam Carson "As people know my Thomas has been born with a syndrome. The syndrome Thomas has is Klinefelters. [...]
XXY Male: Born Different by James Nimmo
Have you ever wondered why you were different? My name is James Nimmo, I am an XXY male [...]
Kelsey Maffei: We all have a story to tell
The following is a bit of my story… "We all have a story to tell, and a perspective [...]
A few days later I canceled our XXY abortion.
My husband and I got married a few years ago. I was 34 and he was 44. We [...]
Free Forest School: The benefits of free play in nature
Free Forest School: The benefits of Free Play in Nature Written by Kat Pacheco. Please also take the [...]
Father Learns of Son’s XXY
After being married in 2015, life was amazing. My wife and I had really dug in our careers, [...]
Try Try Try
“TRY, TRY, TRY!” were the words that came out of Jack’s mouth as he attempted to run up [...]
Finding Resources For Klinefelter’s In Rural Areas
Finding Resources For Klinefelter's In Rural Areas By Chelsea Castonguay When our son was born, my husband and [...]
Learning About Our Son’s XXY Diagnosis
Learning about N By Chelsea Castonguay When I got pregnant, my husband and I debated about finding out [...]
Putting one foot in front of the other – Living with Klinefelter syndrome.
Forty one-year-old Chef Geoff Kruck was diagnosed with Klinefelter syndrome (KS) in 2012. KS is a genetic condition [...]
Baby Boy Born With Klinefelter XXY
Creating life is an incredibly intricate and personal thing. Before you even know the gender of your baby, [...]
Marci Tatham “Jack’s Mom” Joins Living With XXY
Hey Everyone! My name is Marci Tatham and I’m pleased to announce that I’ve officially joined the Living With [...]
Klinefelter Syndrome Speech Therapy Tips
“But your son doesn’t sound like he needs speech therapy.” or “But he’s only 10 months old. What [...]
Klinefelter Syndrome 47 XXY And Beyond: Nicholas Griwicki
In early January of 1994, we were planning for our first baby and we were so very excited. [...]
XXY Teenager: 15 Year Old Sean And His Story
A story about 15-year-old XXY teenager Sean written by his mother Kristin. On July 29, 2002, I gave [...]
XXY Syndrome Diagnosis Guide
Our Vision Our capacity to love has expanded because of our son, Jack. Our vision with this [...]
High school with XXY
How did I manage to get through High School with XXY? This is a small account of Ryan [...]
Living With XXY Newsletter: April 2020
Stanford BGAP Study Visit In late February, our team had the privilege of meeting the team [...]
Establishment of Care: Klinefelter Syndrome Guide
Jack was the name we picked out for our son before we even knew he was a boy. [...]
Klinefelter Prenatal Testing Guide
“You tested positive for Klinefelter Syndrome, therefore you’re expecting a boy,” stated the genetic counselor, sitting across from [...]
Finding my “X”
My name is Gregory Duncan, I am 30 years old and I have Klinefelter syndrome and this is [...]
47 XXY Life WORTH Living
47 XXY Positivity Jack’s Story Our son, Jack Ryan, was born in June 2018—weighing in at 9 lbs, 2 [...]
My son Joey is soon to be 28 years old, 14 years since he was diagnosed.
My son Joey is soon to be 28 years old. It’s been 14 years since he was diagnosed [...]
New Chromosome Clinic Offers Hope
Kids aren’t likely to bully Connor Blundin. At 16 years old, he’s well over 6 feet tall and [...]
Klinefelter Syndrome: Building A Community With Ryan Bregante.
Klinefelter Syndrome. When Ryan Bregante sees statistics estimating that 1 in 500 males has the extra X chromosome [...]
Social Media
Our social media content is on the following platforms:
