My name is Marci Tatham and I’m pleased to announce that I’ve officially joined the Living With XXY team as their newest board member and first ambassador! Check out my first YouTube video, where I introduce myself and put a face to the name (you may recognize me from a few social media appearances on Living With XXY). If not, HELLO! Nice to meet you.
A little bit about myself…
My husband and I live in Los Angeles, CA with our son, Jack, who turns 2 this summer. Jack was born with Klinefelter Syndrome (I tested positive in utero and his diagnosis was confirmed 2 weeks after his birth). Ryan was the first person we turned to when we learned about Jack’s diagnosis. Since meeting Ryan and getting involved with Living With XXY, we’ve taken a rather aggressive approach to meet all of Jack’s developmental needs during these formative years in his life. We’ve done early intervention, met with countless specialists, participated in the research, and opted for early hormonal therapy. At the same time, we’ve found a healthy balance between excessive medicalization and simply enjoying our thriving toddler. Jack is a bright light in our lives and for the people fortunate enough to know him. He is full of energy, full of personality, and never hesitates to wave endlessly to strangers.
As we navigate this journey one day at a time, our intent is to help other families by linking arms to create a better future for our community and for our amazing sons. As I’ve mentioned, I’m not a medical professional or expert parent by any means. I can’t tell you how many times we’ve failed in our parenting or hit roadblocks during our quest for answers to an often confusing journey. What I can tell you, is that our early efforts, commitment to ongoing learning, and support from the community have propelled Jack in his overall development and launch to his amazing life ahead. We hope our videos and blog entries will provide a practical approach to raising a son with Klinefelter Syndrome and leave families feeling more empowered, supported, and inspired.
Thanks for joining along.
-Marci (Jack’s Mom)
My name is Joe,
Age 40, diagnosed at age 13 for klinefelter’s syndrome at madigan hospital in Wa.
That’s good you caught that early on in your sons life. I definitely had some learning and attention difficulties throughout school years. Speech classes is good. I mumbled alot/didn’t speak loudly and when I did, it came across like yelling. Building self esteem/confidence has been a struggle throughout my life. But I think with the right amount of testosterone, it truly helps. Its been years since I looked up klinefelter’s online, I came across this site and I’m glad and appreciate reading a more positive view.
Hello Marci and team,
My name is Jackie and I recently confirmed my son’s in-utero 47-XXY diagnosis via amniocentesis. I am currently 18 weeks pregnant and want to do all my homework in preparing for his arrival. As a first time mom I am anxious and would like any help/resources you may provide. I want to advocate for my son’s care including getting him early interventions/management. I am within the Los Angeles area and briefly read about Cedar Sinai’s eXemplarY Kids Clinic. Would love to connect if anyone from your team. My body and mind are in SOS mode and I am trying to keep everything at bay to keep a healthy pregnancy. Looking forward to hearing from you.
Hey Jacqueline! Just seeing this- if you still need to connect please feel free to email Ryan, [email protected], or myself, [email protected] so we can help. Take care!