EARLY INTERVENTION PROGRAMS FOR XXY

Infants and toddlers from birth to age 3 either have a diagnosed physical or mental condition that has a high probability of resulting in developmental delay or are experiencing a developmental delay. Alabama includes physical development, communication development, social or emotional development.

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Developmental Delay is functioning at  15% below chronological age or corrected age, including gross motor development, sensory development, speech or language development. Having a  diagnosed physical or mental condition that has a high probability of resulting in a developmental delay.

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Developmental Delay is identified as not  reached fifty percent of the developmental  milestones expected at his/her chronological age in one or more of the  following areas of childhood development:  physical, cognitive, language/communication, social/emotional,  Established conditions that have a high probability of developmental delay include chromosomal abnormalities; metabolic disorders;

Arkansas 

Infants and toddlers are determined eligible for early intervention under Part C if they have a medically diagnosed physical or mental condition that has a high probability of resulting in developmental delay. “Significant delay” for the State of  Arkansas is defined as a delay of 25% of  the child’s chronological age or greater in  one or more area of development including  but not limited to, gross and fine motor,  communication, social or emotional,

California 

(2) Infants and toddlers with established risk conditions, who are infants and toddlers with conditions of known etiology or conditions with established harmful developmental consequences. Infants and toddlers who are at high risk of having a substantial developmental disability due to a combination of biomedical risk factors,  the presence of which are diagnosed by qualified personnel recognized by, or part of, a multidisciplinary team, including the parents.

Colorado 

The State of Colorado specifically identifies  Klinefelter Syndrome (47 XXY) under their database of all diagnosed conditions.

Connecticut 

Underdiagnosed conditions the State of  Connecticut lists, Karyotype 46, X with abnormal sex chromosome which is eligible for Klinefelter Syndrome  (47 XXY).

Delaware 

An established condition is one with a high probability of developmental delay including, but not limited to, the following examples: Chromosomal Disorders,  such as chromosomal duplications.  State of Delaware A 25% delay when compared to age expected level of development in one or more of the following developmental domains:  cognition, physical/motor, social-emotional, adaptive with expressive language delays only are not eligible except based on clinical judgment. Any delay in communication in conjunction with a 25% delay in one or more of the following developmental domains:  cognitive, physical/motor, social-emotional, and adaptive.

Florida 

Georgia 

The State of Georgia’s EI lists Klinefelter syndrome (47 XXY) is listed on the Child’s Health Conditions Database.

Hawaii 

A significant developmental delay (30  percent below age norm, or six months behind other children the same age) in any of the following areas of development;  included but not limited to, physical, communication, social or emotional. A physical or medical condition (called an “established condition”) usually results in developmental delay.

The State of Illinois lists chromosomal abnormalities, but not 47 XXY, syndromes are not DSCC eligible by themselves but may include DSCC eligible conditions. of  Illinois lists orthopedic abnormalities but does not list specifically those associated with 47 XXY – Extraordinary Kids Clinic information: Motor delays are present in approximately 50% of boys with KS, and hypotonia is commonly associated [48,70]. Other common features such as mild hypermobility, pes planus with ankle pronation, and/or genu valgum can further affect motor development.

A delay in development may or may not be exhibited at the time of diagnosis.  The State of Kansas lists examples of  Chromosomal Abnormalities and Genetic  Disorders, 47 XXY is not on that list but  Kansas states the list does not exhaustive,  Kansas suggests many medical diagnoses may impact development,  although with a lesser probability than those conditions listed as established conditions including Torticollis. However you should contact Kansas Infant Toddler services when developmental concerns exist concurrent with these diagnosed conditions, the child’s evaluation team shall determine eligibility based on eligibility criteria outlined in Subsection II-A above.

Each site conducts Child Find, which is the process of identifying children with disabilities. Screenings and evaluations are provided to identify children who are eligible for services.

• Abnormal muscle tone
• Atypical developmental patterns of mobility, oral motor, gross and fine motor, cognitive, and/or adaptive development.

The State of Minnesota specifically lists  Klinefelter Syndrome (47 XXY) under Chromosomal Anomalies as an Established Condition for automatic eligibility for Early On the Minnesota EI program.

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The State of Montana qualifies Klinefelter Syndrome or 47 XXY to meet the criteria EI as an established condition.

Early Intervention services are designed to meet the developmental needs of an infant or toddler with a disability and the needs of the family to assist appropriately in the infant’s or toddler’s development, as identified by the IFSP Team, in any one or more of the following areas, including but not limited to physical, communication, and social-emotional development. Has a diagnosed physical or mental condition that has a high probability of resulting in a developmental delay; conditions such as chromosomal abnormalities, genetic or congenital disorders, and anomaly, Is experiencing any of the other disabilities described in 92 NAC 51-006.04 including Orthopedic Impairment, dyslexia, and developmental aphasia, the child must have a disorder in one or more of the basic psychological processes involved in understanding or in using language,  spoken or written, that may manifest itself in an imperfect ability to listen, think,  speak, read, write, spell or do mathematical calculations. Attention deficit disorder or attention deficit hyperactivity disorder.

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To determine eligibility a child is assessed for developmental delay, established condition, or atypical development. A  child must be referred to Early Supports and Services and the referral can come from anyone, it does not have to come from your child’s physician. During the assessment process, a child’s motor skills, communication development,  learning skills, social interaction, and emotional development are fully evaluated.

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The State of North Dakota lists Klinefelter syndrome (47 XXY) on the list of examples of High-Risk Diagnoses and  Conditions for Guiding Auto-Eligibility for  DD Program Management Determination for Infants and Toddlers.

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The State of Oregon states that Sex Chromosome disorders for example Turner’s Syndrome do NOT associate with a high probability of significant developmental delays, those the State acknowledges orthopedic impairment and developmental delays in physical,  communicative, and social/emotional development.

A 25 percent delay in one or more areas of development such as physical, communication, social/emotional development. Or a known physical or mental condition that has a high probability of developmental delays.

Diagnosed physical or mental condition shall be based on medical diagnoses, such as chromosomal abnormalities OR  Developmental delay may be manifested in one or more of the following areas: physical, communication, social-emotional development observed through an In Clinical Opinion (ICO).

The State of Tennessee lists Klinefelter syndrome (47 XXY) on the list of eligibility by diagnosis.

The State of Texas lists Klinefelter Syndrome (47 XXY) as eligible for EI under qualifying diagnosis.

3) A diagnosed condition with a high probability of a developmental delay such as chromosomal abnormalities, endocrine disorders with a high probability of resulting in developmental delay; other physical or mental conditions at the multidisciplinary team members’ discretion.

An infant or toddler may be deemed eligible for services under this Chapter if he/she is less than three (3) years old, a resident of the state of Wyoming, and: (i) Has a documented developmental delay; or (ii) Has a diagnosed physical or mental condition that has a high probability resulting in a developmental delay.