OUR TEAM OF VOLUNTEERS

We share a passion for openly talking about Klinefelter syndrome. Ryan and Kelsey both have Klinefelter syndrome (47,XXY) and together bring a lot of experience relating to Living with XXY. Marci met Ryan thru Instagram right after having a (NIPT) test when she was pregnant with her son Jack. As a team we strive to learn and grow as we provide resources which will benefit the greater community of those Living with XXY.

Ryan BregantePresident-Board Member

So happy you made it! My parents found out in 1985 that I was going to be born with Klinefelter syndrome (non-mosaic 47 XXY). I was told at 9 years old. I started “Living with XXY” in 2017 to break down the stigmas and provide positive information. I live in San Diego, CA

Marci TathamAmbassador-Board Member

Otherwise referred to as Jack’s mom, I live in sunny Los Angeles, CA with my husband, Matt and our son Jack. Jack has a vibrant personality, intelligent mind, curious spirit, and a loving heart—undoubtedly born with the gift of joy. Jack also happens to live with Klinefelter Syndrome 47 XXY.

Kelsey MaffeiSecretary-Board Member

I was diagnosed with Klinefelter syndrome (non-mosaic 47 XXY) at age 27 while attempting to start a family with my wife. Since then, I have 2 wonderful children using donor sperm and intrauterine insemination (IUI). We live in Salem, OR.

Daniel Milchev Treasurer-Board Member

Hi, I don’t have Klinefelter syndrome, but my friend Ryan does. I live in Edwards, CO. Since I found out about his condition, I have been wanting to help him with his efforts to make change. Living with XXY is my opportunity!

Traci Peterson- Administration

I met Ryan through another work assignment. Through our friendship, I learned of XXY/Klinefelter Syndrome. I’ve always enjoyed genetics and a love for educating people to facilitate inclusion and acceptance. My husband, son, and I live in La Mesa, California.

Susan Roberts-Organizational Development

I’m a married mom of three boys that lives near Sacramento, CA. My youngest son, Thane, was diagnosed in utero with XXY. As knowledge spreads, we grow as part of a beautiful community. I’m here as an advocate to spread awareness for my son and other boys and men like him.

WHERE YOUR DONATIONS GO.

As a NonProfit, Living with XXY is committed to being as transparent as possible in keeping you informed about how we intend to use the money we receive from donations and other sources. Your donations allow us to continue to pursue our mission of spreading awareness, providing education, and offering hope and support to those Living with XXY.

The following represents the known and estimated expenses which have been identified, and are anticipated for the completion of our vision and goals.* The list includes, but is not limited to the expenses listed.

* This is subject to modification as the organization changes over time, and as such will be updated accordingly.

Software

Social Media

Website

Training & Certifications

Travel

Legal Work

Office Supplies

Insurance