OUR TEAM OF VOLUNTEERS

We welcome you to our wonderful team of volunteers. We share a passion for hard work ethic, work smarter not harder, keeping things simple, and making a difference. Together we bring years of experience Living With XXY. From day to day life and beyond we cover the spectrum of individuals with Klinefelter syndrome(47 XXY) who have been diagnosed throughout life. Our nonprofit 501.C.3 organization was started on November 6th, 2019. We are excited to continue to learn and grow while providing real-life resources to benefit our community.

BOARD MEMBERS

Ryan BregantePresident & Founder

“The stigmas of the past will not take away the voices of the future.” My parents found out in 1985 via amnio that I was going to be born with Klinefelter syndrome (non-mosaic 47 XXY). I was told at 9 years old. The first time I googled Klinefelter syndrome was in June of 2017, a few months later I started the “Living with XXY” Youtube channel. In November of 2019 we became an official NonProfit. I currently live in San Diego, CA. Before Living With XXY, I was a Chef for 10 years, graduating from the CIA in 2007. I have had multiple careers since, including a freelance action sports photographer. I love spending time with my family, snowboarding, camping and hiking.

Marci TathamSecretary

Otherwise referred to as Jack’s mom, I currently live in Fresno, California where my husband Matt, and I were born and raised. Our son Jack has a vibrant personality, intelligent mind, curious spirit, and a loving heart—undoubtedly born with the gift of joy. Jack also happens to live with Klinefelter Syndrome (47 XXY.) We love traveling around the world especially to London for Harry Potter and the Beatles. I was born with type 1 Diabetes and was an ambassador for Beyond Type 1 Non-Profit. I love riding my Peloton bike and spending time with family

Daniel Milchev Creative Director - Treasurer

Hi, I don’t have Klinefelter syndrome, but my friend Ryan does. I was born in Bulgaria and I have been living in Edwards, Colorado for over 10 years. Since finding out about Ryans’s condition I have been wanting to help him with his efforts to make change. Living with XXY is my opportunity to use my professional skills as a photographer and filmmaker. I work with many diverse companies including Getty Images, RedBull, GOOGLE, and National Geographic. In my free time, I enjoy spending time with my family. I enjoy snowboarding and mountain biking up here in the mountains.

AMBASSADORS

Mike ChristoffAmbassador

Nature is my therapy, when I am feeling stressed with work or life in general, you can find me in the mountains. My favorite naturalist is John Muir. One of his quotes is on a bumper sticker on my car, “The Mountains Are Calling, I Must Go.” Another Quote “Keep Close to Nature’s Heart…and break clear away, once in a while, and climb a mountain or spend a week in the woods. Wash your spirit clean.”
I am a published iphoneographer. I have been published and interviewed for my landscape photography using my iPhone

Jaclyn ChildersAmbassador

I am a 28 year old mom from Michigan. I live here with my husband and XXY baby, Elijah! We received prenatal testing that showed Eli may have Klinefelter’s. When he was born in March of 2020, his diagnosis was confirmed with cord blood testing. My job allows me to be with Eli most of the time, and we plan to homeschool in the future. When I’m not on mom-duty, I love live concerts (pre-COVID), good coffee and shamelessly watching guilty pleasure shows like 90 Day Fiance and The Office!

Geoff KruckAmbassador

G’day, I’m Geoff and I live in Victoria, Australia. My wife and I have been married for 12 years and we have a kind hearted 9yo Border Collie named Kargi – which means Brother in Aboriginal.
I’m a chef by trade and last year started my own business: Krucky’s Fine Foods. I love to create delicious chutneys and jams, as well as Granola and a range of gourmet crackers. I also run a successful Sourdough Bread business from home and am expanding into an 100yo wood fired bakery over the next few months. Part of my dream for the business is to be able to mentor and train others in my craft.

CONTRACTED TEAM MEMBERS

Chelsea CastonguayWriting Director

My name is Chelsea Castonguay, and I’m a professional writer and author, as well as the mom of a toddler with XXY. When I’m not helping folks share their stories about living with XXY, I keep busy helping people create amazing resumes, writing content for websites, or working on my second novel. I live in a small town in rural Maine with my son, husband, a tortoiseshell cat who’s the boss of us all, and a black lab. We also have a backyard flock of seven chickens. I’m passionate about learning more about Klinefelter Syndrome and helping this amazing community grow. I look forward to working with you and your family. If you have any questions, please email me.

Carson BlakeEarly Intervention (EI)

My name is Carson, I’m the Living with XXY Advocate for Early Intervention (EI).

My husband Kevin and I met in college and are alumni of Emporia State University. We are currently raising two boys here in Middle America. Our youngest is 47, XXY receiving a diagnosis at 16 months.

Advocacy is a part of our family! Not only do we all focus on supporting the XXY community but as a family, we also advocate for safe active transportation such as walking and biking in rural & suburban areas.
We all love getting outside, connecting, and the only thing missing is my need for a year-round warm climate!

MORE VOLUNTEERS

Julia MaturskaAdmin & Social Media

Years ago I came to the United States from Poland to be an Au Pair. I had the chance to mesh my Polish upbringing with American culture and apply it to child care. There’s no better feeling than excitement and pride watching children grow up. I learned about XXY upon meeting Ryan when I moved to San Diego. My focus is building a successful social media platform. I grew up dancing to Frank Sinatra, attended University for International Business and I love eating napoleons (yum!). I spend my free time working on advanced yoga techniques, hiking, and paddleboarding in beautiful San Diego.

Susan Roberts-Organizational Development

I’m a married mom of three boys that lives near Sacramento, CA. My youngest son, Thane, was diagnosed in utero with XXY. As knowledge spreads, we grow as part of a beautiful community. I’m here as an advocate to spread awareness for my son and other boys and men like him.

WHERE YOUR DONATIONS GO.

As a NonProfit, Living with XXY is committed to being as transparent as possible in keeping you informed about how we intend to use the money we receive from donations and other sources. Your donations allow us to continue to pursue our mission of spreading awareness, providing education, and offering hope and support to those Living with XXY.

The following represents the known and estimated expenses which have been identified, and are anticipated for the completion of our vision and goals.* The list includes, but is not limited to the expenses listed.

* This is subject to modification as the organization changes over time, and as such will be updated accordingly.

Software

Social Media

Website

Training & Certifications

Travel

Legal Work

Office Supplies

Insurance