OUR TEAM
We welcome you to some of our fantastic team members. We share a passion for hard work and dedication to helping grow knowledge about Klinefelter syndrome/47 XXY. “If you are early, you are on time; if you are on time, you are late.” We are enthusiastic about continuing to raise awareness while providing real-life resources to benefit individuals across the spectrum.
Living With XXY was given nonprofit 501.C.3 status on November 6th, 2019.
BOARD MEMBERS
“The stigmas of the past will not take away the voices of the future.” My parents found out in 1985 via amnio that I was going to be born with Klinefelter syndrome (non-mosaic 47 XXY). I was told at 9 years old. The first time I googled Klinefelter syndrome was in June of 2017, a few months later I started the “Living with XXY” Youtube channel. In November of 2019 we became an official NonProfit. I currently live in San Diego, CA. Before Living With XXY, I was a Chef for 10 years, graduating from the CIA in 2007. I have had multiple careers since, including a freelance action sports photographer. I love spending time with my family, snowboarding, camping, and hiking.
I’m a native of San Diego County. I have enjoyed being a teacher for over 30 years. I have been a preschool special education teacher for the past nine years, emphasizing early intervention and supporting young children with different needs. I have written many Individualized Education Programs (IEPs) to assist my students in academic skills. In the early 1960s, my parents adopted me at two days old, who were indeed my “real” parents. I had a niece who chose adoption for her baby, and I have two cousins who have adopted daughters from China. It has been one of my biggest blessings, and I genuinely believe in and support adoption. I have been married 35 years to my husband, and we have two adult children who have grown and flown. I enjoy being with friends and family, reading, listening to music, and walking in my spare time.
I have known Ryan since 2009. Since finding out about Ryan having XXY, I have wanted to help him with his efforts to create positive change. Through the years, I have covered and enjoyed some of the world’s most significant action sports events like X Games, Crankworx, and Red Bull Rampage.
As the Creative Director and a board member of Living With XXY, I aim to inspire people through the power of my vision. Some of the companies I have had the pleasure of working with are:
Discovery Education, National Geographic, National Geographic Children, ESPN, VitaminWater, Vail Corporation, Getty Images, NBC, Microsoft, FORD Motor Company, BMW, RedBull, Facebook, Outside MAG, Men’s Journal, Forbes, Huff Post, and USA Today.
OUTSIDE HELP
My clinical and research interests include caring for infants, children and adolescents with X & Y chromosome variations, including XXY / Klinefelter syndrome and Turner syndrome, and other genetic syndromes that are associated with endocrine conditions. I value working on interdisciplinary teams to provide comprehensive care for children and families with complex medical conditions.
I’m a professional writer, author, and mom of a toddler with XXY. When I’m not helping folks share their stories about living with XXY, I keep busy helping people create resumes, and writing content for websites. I live in a small town in rural Maine with my son, husband, a tortoiseshell cat, and a black lab. It feels wonderful to be a part of the Klinefelter Syndrome team and help grow the community.
I look forward to working with you and your family. If you have any questions, please email me.
I look forward to working with you and your family. If you have any questions, please email me.
I am so excited to learn more about the community and create resources that will empower men with Klinefelter syndrome and their families. For seven years I’ve worked in higher education. I also worked with non-profit organizations teaching, researching, creating content, and advocating for people’s best interests. When I am not working, I am chasing around my toddler, gardening, knitting, or watching a random TV show.
ADVOCATES
Hello everyone, my name is Gareth Landy, and I live in Ireland. I was diagnosed as XXY when I was 37 years old when trying to start a family with my wife, Anna. We now have the most amazing donor-conceived twins who take up pretty much all of our time and focus :) My background is in video production and photography, and until recently, I ran a very successful wedding film business. I like to take on significant challenges, so I cycled the length of Ireland to raise money for children with cancer and have run the Dublin Marathon three times. These days I love to take images of my children with my trusty prime lens, give tips to tourists on things to see in Ireland, and lastly, do some running.
G’day, I’m Geoff and I live in Victoria, Australia. My wife and I have been married for 12 years and we have a kind hearted 9yo Border Collie named Kargi – which means Brother in Aboriginal. I’m a chef by trade and last year started my own business: Krucky’s Fine Foods. I love to create delicious chutneys and jams, as well as Granola and a range of gourmet crackers. I also run a successful Sourdough Bread business from home and am expanding into an 100yo wood fired bakery over the next few months. Part of my dream for the business is to be able to mentor and train others in my craft.
Nature is my therapy, when I am feeling stressed with work or life in general, you can find me in the mountains. My favorite naturalist is John Muir. One of his quotes is on a bumper sticker on my car, “The Mountains Are Calling, I Must Go.” Another Quote “Keep Close to Nature’s Heart…and break clear away, once in a while, and climb a mountain or spend a week in the woods. Wash your spirit clean.”
I am a published iphoneographer. I have been published and interviewed for my landscape photography using my iPhone.
I am a published iphoneographer. I have been published and interviewed for my landscape photography using my iPhone.