KLINEFELTER CLINICS AND CARE

CHILDREN’S HOSPITAL COLORADO CLINIC

Location: Denver, Colorado – USA
Age: Birth to Young Adulthood

The eXtraordinarY Kids Clinic addresses the complex needs of children with a sex chromosome aneuploidy through multidisciplinary care. Come see how we’re improving outcomes and quality of care at our clinic.

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NEMOURS CHILDREN’S HOSPITAL DELAWARE

Location: Wilmington, Delaware – USA
Age: Prenatal to Young Adulthood

Nemours/Alfred I. duPont Hospital for Children has launched a comprehensive new program for children with X and Y chromosome variations. The eXtraordinarY Kids Clinic brings together a team of experts in medical and therapeutic disciplines to address the unique needs of patients with these common but frequently undiagnosed genetic conditions.

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CHILDREN’S HOSPITAL OF PHILADELPHIA CLINIC

Location: Philadelphia, PennsylvaniaUSA

Age: Prenatal to Young Adulthood

We offer a collaborative program for Klinefelter Syndrome (and all X and Y variations). This clinic consists of an interdisciplinary team including endocrinologists, geneticists, genetic counselors, psychologists, developmental pediatricians, reproductive urologists, and nurse practitioners.

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JOHNS HOPKINS KLINEFELTER CENTER

Location: Baltimore, Maryland – USA

Age: All Ages

Helping promote awareness and support happy healthy lives through positive education about XXY / Klinefelter syndrome in New Zealand. Connecting with organizations and associations learning of and sharing XXY / Klinefelter syndrome experience internationally.

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EXTRAORDINARY AT EMORY UNIVERSITY CLINIC

Location: Atlanta, Georgia – USA

Age: Birth to Young Adulthood

sex chromosome, Klinefelter syndrome

Families have a place to turn for help with sex chromosome disorders who have been falling through the cracks for decades. Our clinic meets a tremendous needs.

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STANFORD UNIVERSITY SCHOOL OF MEDICINE

Location: Stanford, California – USA
Age: Children and Young Adults

The Division of Child & Adolescent Psychiatry and Child Development in the Department of Psychiatry and Behavioral Sciences is an integral part of one of the preeminent child and adolescent mental health treatment consortiums in the country, which includes Lucile Packard Children’s Hospital at Stanford, Stanford Children’s Health, Stanford Hospital & Clinics, and Stanford University School of Medicine.

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CEDARS SINAI EXEMPLARY KIDS CLINIC

Location: Los Angeles, California – USA
Age: Birth to age 21

XXY Syndrome

Cedars-Sinai Pediatric Endocrinology Services offers comprehensive medical services for children and young adults with diabetes and endocrine disorders, from newborns up to 21 years old. Cedars-Sinai provides complete diagnostic and treatment services for the full range of endocrine disorders.

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MASSGENERAL HOSPITAL KLINEFELTER CLINIC

Location: Boston, Massachusetts – USA
Age: Prenatal to Adulthood

The MassGeneral Hospital for Children Klinefelter Syndrome clinic takes a multidisciplinary approach to providing quality, coordinated care to individuals living with Klinefelter syndrome. We are a subspecialty program, which means that we do not offer routine primary care but instead we offer our patients a comprehensive evaluation, specific to the needs of people with Klinefelter syndrome.

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WEILL CORNELL MEDICINE KLINEFELTER CLINIC

Location: New York City, New York – USA
Age: Birth to Young Adulthood

The Weill Cornell Medicine (WCM) Klinefelter Syndrome Care Center offers multidisciplinary care for children and adults with Klinefelter syndrome. Co-directed by Dr. Peter Schlegel of Urology and Dr. Lilian Cohen of Medical Genetics, our program brings together a broad team of experts to offer our patients comprehensive evaluation and subspecialty care. Our goal is to provide the best care based on advances in health information and evidence-based treatment.

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EXTRAORDINARY KIDS CARE – CLEVELAND CLINIC

Location: Cleveland, Ohio – USA
Age: Prenatal to Young Adulthood

The Cleveland Clinic Cares for Klinefelter Syndrome and other XY Variations program provides a wide range of support and intervention for individuals with an XY variation syndrome and their families- from prenatal diagnoses, to adolescence, and into young adulthood. We help coordinate access to experts in a variety of medical and psychological disciplines to support these conditions, with our ultimate goal being to help these individuals to lead independent and healthy lives.

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OTHER NONPROFIT’S AND PERSONAL BLOG’S

COLTON’S XXXTRAORDINARY CAUSE

Location: Red Hook, New York – US

To provide a central location for factual information that is easily digestible to understand, as well as have a central location for support services. Awareness to education, health professionals and the wider community.

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KLINEFELTER SYNDROME NEW ZEALAND

Location: NEW ZEALAND

Helping promote awareness and support happy healthy lives through positive education about XXY / Klinefelter syndrome in New Zealand. Connecting with organizations and associations learning of and sharing XXY / Klinefelter syndrome experience internationally.

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THE DUTCH KLINEFELTER ASSOCIATION

Location: Amersfoort – NETHERLANDS

We represent the interests of boys and men with the Klinefelter Syndrome. We aim to improve the welfare of these boys and men, their parents, partners and other directly involved parties. With our experiences, we strive for more attention for the syndrome, more attention for the boys and men, the parents and partners, better care and assistance and for a better quality of life.

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THE ASSOCIATION FOR KLINEFELTER SYNDROME.

Location: Falkenstein, GERMANY

The association 47xxy Klinefelter syndrome offers reliable advice to Klinefelter syndrome carriers and their relatives, parents and expectant parents. We want to encourage people who have been diagnosed with Klinefelter syndrome.

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TOGETHER YOU ARE LESS ALONE. PERSONAL BLOG

Location: Bavaria, GERMANY

My name is Jakob, 2 years ago I was diagnosed with Klinefelter syndrome. I am 30 years old and live in Bavaria, Germany. My website is here to help people with up to date research and real information.

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THE KLINEFELTER SYNDROME ASSOCIATION

Location: Chemnitz, GERMANY

We were founded in 1992 as a volunteer self-help organization at a federal level with 600 active members and growing. Our goal is to support people with Klinefelter syndrome as well as their relatives.

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KLINEFELTER SYNDROME AUSTRALIA INC

Location: Brisbane, Queensland – AUSTRALIA


To provide a central location for factual information that is easily digestible to understand, as well as have a central location for support services. Awareness to education, health professionals and the wider community.

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ASSOCIATION FOR X AND Y CHROMOSOME VARIATIONS

Location: Paol, Pennsylvania – USA

The mission of AXYS is to help individuals with one or more extra X and/or Y chromosomes and their families to lead fuller, more productive lives. WE fulfill this mission by satisfying previously unmet needs and improving the lives of those impacted by the X and Y chromosome aneuploidies including Klinefelter syndrome (47,XXY), Trisomy X (47,XXX), 47,XYY syndrome, 48,XXYY, and related genetic conditions through:

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SPANISH KLINEFELTER SYNDROME ASSOCIATION

Location: Madrid, SPAIN

The Spanish Klinefelter Syndrome Association offers support and information to all those affected or interested in Klinefelter Syndrome

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KLINEFELTER SYNDROME ASSOCIATION

Location: London, UNITED KINGDOM

To offer support and information to all affected by KS and XXY. To raise awareness of KS and XXY especially amongst the medical profession. To promote research into the management of KS and XXY

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