WHAT ARE THE CHALLENGES WE FACE?

How do we separate ourselves from the perceptions that are already heavily influenced by outdated information on the internet? How do we influence those perceptions to illustrate who we really are? And how do we begin to break down the resulting stigma of these false perceptions and encourage people to be more open with having Klinefelter syndrome? More challenges:

  • Between 1-400 to 1-650– Males are born with Klinefelter syndrome. Only 25% will be diagnosed at some point in their lifetime, 75% will never know.

  • Google Search– Information is very negative and only talks about health related issues and educational problems. Lacking positive information.

  • Old Images– Photos are way past their prime and depict a very small part of the spectrum.

  • Spectrum– Little understanding on the degrees of variance.

  • Lack of Research Insufficient number of clinical trials and knowledge on what to study.

  • Divided Community– Since this is a spectrum, many people argue about their differences.

  • Lacking Medical Knowledge– Very few doctors and medical teams understand our condition.

  • Educational Tools– Limited resources to help kids and adults with learning and how their brain functions.

  • Self Advocacy– Very few understand their own condition.

What is 47 XXY

TOOLS TO OVERCOME THE CHALLENGES.

As an organization, Living with XXY will model the way for our community to influence change. We will work together to provide awareness through personal connections, reinforce positivity through social media, and influence change through strategic partnerships. Learn more about some of these tools below:

TEACHING SELF ADVOCACY

We will work to educate people on how to best advocate for themselves, on such topics as testosterone & deciphering bloodwork, improving social skills, and dealing with depression & anxiety.

PEER TO PEER MENTORSHIP

Through fostering personal connections with people from different generations, we can ensure that younger generations learn from the experience of their peers in how to overcome challenges faced by living with Klinefelter syndrome.

VOLUNTEERING NETWORK

There are many ways to contribute to the success of our community, and we will establish a network which pools the strengths and experiences of our community to provide support for each other.

STRATEGIC PARTNERSHIPS

Joint projects with other nonprofits, school systems, or medical partners, will enhance the access to resources and encourage the spread of a more positive awareness of Klinefelter syndrome.

THIS IS YOUR OPPORTUNITY TO HELP.

In order to bring more awareness to Klinefelter syndrome we must rely on our community to help us build a database of amazing volunteers. This is your opportunity to become an integral part of practicing our Fundamental Values of both teamwork and collaboration. Are you up for the amazing journey ahead? Here are more ways to help make our shared dreams a reality.

TEACHERS

Help us spread our message to your students. We also need your help to teach us new ways of right brained ideas so we can better help our community.

FUNDRAISING TEAM

Your help and expertise will help us succeed in our campaign donations so we can continue to accomplish our goals each year as we grow.

SOCIAL MEDIA SHARING

You can share our social media posts on your own networks. Create posts about Living with XXY.