WE ARE LIVING WITH KLINEFELTER SYNDROME/47 XXY

Living with XXY is changing the way the world views Klinefelter syndrome (47XXY). Focusing on community, awareness, and positive traits.

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Klinefelter Syndome young kids smiling

WHAT ARE THE CHALLENGES WE FACE?

  • Between 1-400 to 1-650– Males are born with Klinefelter syndrome. Only 25% will be diagnosed at some point in their lifetime, 75% will never know.
  • Google Search– Information is very negative and only talks about health related issues and educational problems. Lacking positive information.

  • Old Images– Photos are way past their prime and depict a very small part of the spectrum.

  • Spectrum– Little understanding on the degrees of variance.

  • Lack of Research Insufficient number of clinical trials and knowledge on what to study.

  • Divided Community– Since this is a spectrum, many people argue about their differences.

  • Lacking Medical Knowledge– Very few doctors and medical teams understand our condition.

  • Educational Tools– Limited resources to help kids and adults with learning and how their brain functions.

  • Self Advocacy– Very few understand their own condition.

What is Klinefelter syndrome?

TOOLS TO OVERCOME THE CHALLENGES.

As an organization, Living with XXY models the way for our community to influence change. We are workig together to provide awareness through personal connections, reinforce positivity and influence change through strategic partnerships. Please Click Icons to learn more about some of these tools below:

Each story shares the real life of someone within our community and brings hope to those who are just finding out about their diagnosis.

Using video to help educate people on how to best advocate for themselves, on such topics as, improving social skills, testosterone and dealing with depression & anxiety.

Here is a collection of research papers written on Klinefelter Syndrome. We have put all papers we could find in one place for you to access easily.

Through personal connections from different generations, we can ensure that people learn how to overcome challenges they may face by listening to others experiences.

Through personal connections from different generations, we can ensure that people learn how to overcome challenges they may face by listening to others experiences.

THIS IS YOUR OPPORTUNITY TO HELP.

In order to bring more awareness to Klinefelter syndrome we must rely on our community to help us build a database of amazing volunteers. This is your opportunity to become an integral part of practicing our Fundamental Values of both teamwork and collaboration. Are you up for the amazing journey ahead? Here are more ways to help make our shared dreams a reality.

WRITERS

Do you love to write? We are looking for people who want to share their talent to make our communities personal stories come to life.

SOCIAL MEDIA SHARING

You can share our social media posts on your own networks. Create posts about Living with XXY.

FUNDRAISING TEAM

Your help and expertise will help us succeed in our campaign donations so we can continue to accomplish our goals each year as we grow.