PROFESSIONALLY CURATED PODCASTS ON LIFE, SELF ADVOCACY & GENERAL HEALTH
Welcome to our XXY Podcasts. Our XXY Podcasts are produced and recorded by our president and founder Ryan Bregante. He runs the entire Non-Profit from a spare bedroom in his house. The XXY Podcasts series has given people a voice from all over the world to share their personal experiences about how Klinefelter syndrome has impacted their life. From adult men to mothers we offer a personal insight into our community never spoken about in so much detail before. XXY Podcasts can be found on many of the popular podcasting sites like Apple Podcasts, Anchor.fm, Spotify, and many more.
Jared Pike was diagnosed with Klinefelter syndrome nearly 10 years ago while trying to have kids. After trying for more than five years and multiple sperm tests, a new doctor suggested doing a Karyotype. With his wife’s support, Jared decided to take a year off from their fertility journey to process, understand, learn and grieve his new diagnosis.
Jake Gray, at the age of 25, found out about his XXY diagnosis while his wife was being tested for some health concerns. The doctor wanted to try Jake for fertility since his wife was flagged for FMA. At 25, he was in shock and denial about his diagnosis. Now 27, Jake is a new father to a baby boy after choosing to use donor sperm.
Sierra Westley Wilson became pregnant at 27, she wanted to know the gender of their baby, so they did NIPT, and they were told they had a 36% chance of their baby having Klinefelter syndrome. Once her son was born, they did a routine blood draw, and two weeks later, they learned their son had 48, XXXY.
Jennifer Fritz Voige spent eight agonizing years trying to find her son’s Klinefelter syndrome diagnosis. At the age of 5, Toby started to show challenges after they took away his nap. In kindergarten, his teachers noticed some blank stares and let Jennifer know something might be happening. This was the start of their long journey.
Jose Ferreira was diagnosed with Klinefelter syndrome while trying to have kids with his wife. A doctor gave them a blood test, and Jose had no idea what XXY was. After learning he was infertile, he experienced mixed emotions and finally realized there was some answer to knowing why he was different. He never thought it was related to his diagnosis.
Whitney Lance received a prenatal diagnosis of Klinefelter syndrome via email from the hospital after a NIPT. In big red letters, it read XXY. Her doctor urged her to see a geneticist, and Whitney panicked and went to google. The geneticist printed information directly from google and didn’t have much more information to share.
Bradford Stucki was diagnosed with Klinefelter syndrome/47 XXY while trying to create a family with his wife. After his diagnosis, their quest to create a family turned to adoption. Despite his diagnosis, Bradford went on to earn his Ph.D. in Human Development and Family Science.
Bradford is a Licensed Marriage and family therapist with 7+ years of experience working with individuals, couples, parents, children (ages 5-12), and families with many relationships and mental health challenges. https://www.bridgehopefamilytherapy.com/
Matthew Keller is a 21-year-old man born and raised in Texas. Matthew was diagnosed with Klinefelter syndrome in high school at 17 years old. After diagnosis, he became angry and didn’t want to understand his diagnosis. Learning he was infertile, his family offered to try Micro-TESE (a procedure that takes sperm directly from the testicular tissue of a man’s reproductive system). Now that Matthew fully accepts his diagnosis, he wants to help other men and boys with XXY to accept themselves and share their own stories to help others!
Taylor Bernstein is a 25-year-old man living alone in Nashville, Tennessee. Taylor was diagnosed in utero since his mother was in the high-risk age category. Taylor talks about what it was like growing up knowing about having Klinefelter syndrome. Despite his struggles, he has accepted and challenged anyone who says he can’t do something. Since moving to Nashville, Taylor started his own company, a personal driving business, and has become very successful. Taylor is very in tune with who he is, how he learns, and what he has to do to break the stigma surrounding XXY.
Luke Breard is a 29-year-old man living in Baton Rouge, Louisiana. When he and his wife could not conceive, they discovered he had an unknown diagnosis. Luke has been living his entire life with Klinefelter syndrome. This is the story of Luke’s XXY diagnosis and how he became an adoptive father to two incredible boys.
Rodrigo Marron was diagnosed with Klinefelter syndrome/47 XXY in February of 2022 at 32 years old after one and a half years of trying for a baby,. Feeling alone and isolated with a diagnosis no one had ever heard about, his wife spent many hours researching to find something to give them a glimmer of hope. Rodrigo was born in Mexico City and moved to Texas as a young child. He talks about his life growing up and some of the challenges of high school, poor grades, and awkward gym class. He went to college to become an architect. Rodrigo shares his story in hopes others will share theirs to help normalize XXY.
Tyler Deur is the father of four-month-old Jax, who was diagnosed with Klinefelter syndrome prenatally. Tyler and his wife decided to do NIPT testing to find out the sex of their baby for a gender reveal party. A doctor’s phone call changed everything, and a new journey started to form. Jax is their first child and the love of their life. Tyler talks about their entire journey and how they have embraced their son’s XXY diagnosis. Very rarely we get to hear a father’s perspective
Carissa Holloway is the mother of Hudson, who is four years old and was diagnosed with Klinefelter syndrome at the age of 2. Hudson’s diagnosis came after they were searching for answers to his respiratory issues and frequent illnesses. After their doctors did a microarray around 2, they learned their son had Klinefelter syndrome, 47 XXY. This was a very unexpected diagnosis for their family. If you would like to purchase a bracelet, click HERE.
Seamus Denison is from Sydney, Australia, recognized he had a pretty good childhood. He struggled in some subjects in school, particularly math and reading. He was an athletic child who played sports and made friends fairly quickly. Seamus had bouts of erectile dysfunction (ED) at a young age, which was not easy to deal with. On the day before his 34th birthday in 2020, he received what he called a “special birthday gift.” That day he had his first appointment with his new endocrinologist, who changed his life.
Sarah Winner is a mother whose son was diagnosed with Klinefelter Syndrome while she was pregnant. A yoga instructor, Sarah lives with her husband, 12-year-old daughter Rylan, and Julian in Naples, Florida. To help raise awareness about 47 XXY and prenatal diagnosis, she is sharing her family’s story to bring more awareness to XXY. Her written story can be found here.
Kristin Lindsay Brisebois is the mother of Cass, a 15-year-old boy living in Canada who was recently diagnosed with Klinefelter syndrome. Kristin talks about Cass as a child and his many struggles. From not talking till four years old, dealing with the public education system, watching her child slip thru the cracks, to extreme bullying and countless doctor visits with no answers. Despite all their family’s challenges, Cass has overcome so many of his struggles and found acceptance living with XXY.
Dylan Mathis is a 26-year-old man living in Chicago, Illinois. Dylan found out he had Klinefelter syndrome in high school around 16-17 years old. After graduating from high school, he went to college with a unique education program and excelled with an art major. After dating the love of his life, he recently got married to his wonderful wife and works as a cable installer. Dylan talks about his struggles throughout his life and overcoming the challenges, gaining confidence along the way.
Greg Coffin is the father of Koa who is an adventurous 2-year-old who loves to skateboard, mountain bike, and be active in nature. Greg talks about his experiences with raising a son who was diagnosed with Klinefelter syndrome and focusing on the things his son can do. Greg’s story is inspirational and paves the way for other fathers to reach out and tell their own stories about raising a son with Klinefelter syndrome.
Tyler Indermill is a 34-year-old man who is currently living in San Diego, CA with his wife. Tyler was diagnosed with Klinefelter syndrome at the age of 33 after 1 year of trying to have kids with his wife. After Tyler’s diagnosis, he tried Micro-Tese and was unsuccessful. Tyler talks about how he found Living With XXY’s podcast and how the stories of others helped him with acceptance and moving forward.
Have you ever wondered what someone’s life might be like being on Testosterone Replacement Therapy for the past 23 years and counting? Ryan shares all of his experiences with you from tips about traveling, insurance, pharmacies, and the trial and errors throughout his life. The purpose of this podcast is to help with education and self-advocacy, so others understand what to possibly expect with the many hoops we have to jump thru to keep our testosterone levels within the normal range.
In this episode, Ryan talks about his life battling the ups and downs with personal hygiene. Ryan goes far back to his early years in grade school when his parents used a star chart to build a routine, to now at the age of 36. This in-depth 50-minute podcast might give you a look into some of those boys and men who are Living With XXY and how to overcome their own personal battles with Hygiene. Enjoy
This is a solo podcast talking about how I’ve come to learn about what executive functions are and how they have impacted my life. I only learned what they were from googling them after hearing about it at a conference 5 years ago. I talk about my personal perspectives and how I’ve learned to adapt to make my life easier. I also talk passionately about how raising awareness for Klinefelter syndrome as a community can have a positive impact across the globe.
We had another incredible opportunity to speak to a college class at Hunter College University NYC. The focus of this interview was about self-acceptance with Klinefelter syndrome and engaging with the classes questions. This is how we continue to change the stigma and teach more people about the spectrum of those affected by XXY. Chelsea is a mother to Noah who is three years old and Ryan who was diagnosed in utero 35 years ago and told at the age of 9.
We had the wonderful opportunity to speak to a college class at New York University this last week. The focus of this interview was about self-acceptance with Klinefelter syndrome. Chelsea is a mother to Noah who is three years old and Ryan who was diagnosed in utero 35 years ago and told at the age of 9.
Anna McLeod is the wife of Gareth Landy who was diagnosed with Klinefelter syndrome while trying to have kids. Anna talks about what it was like to learn about her husband’s diagnosis, her own struggles with the diagnosis, and the difficulties of infertility thru IVF. Anna and Gareth are from Ireland and they ventured over to the United Kingdom for their fertility treatments.
Angela Fuller Heyde is the mother of Adam, who was diagnosed with Klinefelter syndrome. She talks about what it is like to go from being secret about her son’s diagnosis to open and sharing information about her son on TikTok. She talks about her fears and how she knew opening up could give back and change other people’s lives.
Jacqueline Lightcap is the mother of a 17-year-old boy diagnosed with Klinefelter syndrome at 14. After a routine physical their family physician thought their son might have Klinefelter syndrome and recommended they see a pediatric endocrinologist. She went to google when she found out her son possibly had Klinefelter syndrome to do some research in 2017. She said, “That can’t be my son, it didn’t describe him in a lot of ways.”
Koben Meausette is a 23-year-old man living in Victoria, British Colombia, Canada. He was diagnosed in utero with Mosaic Klinefelter syndrome and was told around the age of 13. Koben has hiked half of the Pacific Crest Trail. He has an extreme love for the outdoors. Since his passion for camping, hiking, and adventure is deeply rooted, he makes his own packs with his sewing machine as a hobby. Koben shares his life story, his challenges, and how he was able to overcome them.
Jared Pike was diagnosed with Klinefelter syndrome after trying to build a family for many years. After Jared’s doctor gave him the news using horrible bedside manner. Jared was very confused and went into a deep dark depression over the idea that he wasn’t able to father biological children. Jared talks about the rise to acceptance and enjoying life after diagnosis. After multiple failed IUI sperm donor attempts, Jared and his wife found themselves interested in the foster care system.
Christin Pike is the wife of Jared Pike, who was diagnosed with Klinefelter syndrome while trying to have kids after more than three years of trying. She talks about what it was like to learn about her husband’s diagnosis, supporting him thru difficult times, the difficulties of infertility, and learning about foster care and adoption. This is a wonderful story about the struggles we all face and how we can get through them together despite the odds against us all.
Russell Martin is a 47-year-old man diagnosed with Mosaic Klinefelter syndrome 46XY/47XXY. He lives in Tampa, Florida with his wonderful wife and 2 biological sons. Russell was diagnosed when he was 45 years old after he learned about possibly having Klinefelter syndrome at 13 years old. Russell did lots of research on mosaic Klinefelter syndrome and he knew he had it despite the doctors he went to tell him otherwise.
Shelby Herrle is the mother of 1-year-old Paxton who was diagnosed with Klinefelter syndrome 47 XXY at 3 months old. Shelby explains how her NIPT test said she was having a girl and her ultrasound tech then told her she was having a boy. Paxton is meeting all of his milestones on time and is the happiest baby who smiles and laughs at everyone.
Eli Bucksbaum is a 21-year-old college student living in Denver, Colorado. Eli talks about what it was like being told at 6 years old and about his life growing up. Eli talks about how acceptance with having Klinefelter syndrome has helped him live a much happier life, not dwelling on what he cant do and focusing on what his possibilities are. He is an art major, and currently is showing art in new york city.
Daniel Hellinger is a 30-year-old man living in Seattle, Washington. He has traveled the globe over his lifetime and has also been a part of The Peace Corps. Daniel found out about Klinefelter syndrome when he was diagnosed at 24. Dan talks about what life was like before and after his diagnosis and how testosterone replacement therapy has been a huge help to improve his life quality.
Josh Stanhope is the father of Noah (age 3) who was diagnosed prenatally with Klinefelter syndrome (47 XXY). Josh talks about his journey of learning and understanding what a diagnosis of Klinefelter Syndrome meant. Josh talks about how finding the community of Living with XXY helped ease their fears and better understand Klinefelter Syndrome.
Alex Hyatt is a 34-year-old man with Klinefelter Syndrome. Self-described ginger, with a bright smile, and infectious laugh. When he joined the Peace Corps, he was excited to be assigned to Rwanda, which is in East Africa. The experience wasn’t exactly what he was hoping for when he was struck by a series of mysterious, debilitating symptoms.
Mike Christoff’s behind the scenes interview from our first documentary series called “PERSISTENCE”. Mike talks about his life before his Klinefelter syndrome diagnosis and how it affected him afterward. He became the victim, and how it wasn’t until his failed marriage he learned to focus on the positive.
Niall Barry started researching to find out why he had smaller testicles in 2015. After investigation, Niall was certain he had Klinefelter syndrome. When reading about the possibility of infertility, he was gutted and stopped all research. In 2018 Niall’s girlfriend Isabel pushed him to go get tested.
Stefan Schwarz was diagnosed with Mosaic Klinefelter syndrome in 1996 at 26 years old. He has been a strong advocate. Here is his website. We are glad to have him on the show.
Ryan Bregante talks about growing up and going through grade school and middle school. From bullying to believing in himself and self-advocating.
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