XXY Podcast

PROFESSIONALLY CURATED PODCASTS ON LIFE, SELF ADVOCACY & GENERAL HEALTH

Welcome to our XXY Podcasts. Our XXY Podcasts are produced and recorded by our president and founder Ryan Bregante. He runs the entire Non-Profit from a spare bedroom in his house. The XXY Podcasts series has given people a voice from all over the world to share their personal experiences about how Klinefelter syndrome has impacted their life. From adult men to mothers we offer a personal insight into our community never spoken about in so much detail before. XXY Podcasts can be found on many of the popular podcasting sites like Apple Podcasts, Anchor.fm, Spotify, and many more.

After one and a half years of trying for a baby, Rodrigo Marron was diagnosed with Klinefelter syndrome/47 XXY in February of 2022 at 32 years old. Feeling alone and isolated with a diagnosis no one had ever heard about, his wife spent many hours researching to find something to give them a glimmer of hope. Rodrigo was born in Mexico City and moved to Texas as a young child. He talks about his life growing up and some of the challenges of high school, poor grades, and awkward gym class. He went to college to become an architect. Rodrigo shares his story in hopes others will share theirs to help normalize XXY.

Tyler Deur is the father of four-month-old Jax, who was diagnosed with Klinefelter syndrome prenatally. Tyler and his wife decided to do NIPT testing to find out the sex of their baby for a gender reveal party. A doctor’s phone call changed everything, and a new journey started to form. Jax is their first child and the love of their life. Tyler talks about their entire journey and how they have embraced their son’s XXY diagnosis. Very rarely we get to hear a father’s perspective

Carissa Holloway is the mother of Hudson, who is four years old and was diagnosed with Klinefelter syndrome at the age of 2. Hudson’s diagnosis came after they were searching for answers to his respiratory issues and frequent illnesses. After their doctors did a microarray around 2, they learned their son had Klinefelter syndrome, 47 XXY. This was a very unexpected diagnosis for their family. If you would like to purchase a bracelet, click HERE.

Born in Sydney, Australia, Seamus Denison recognized he had a pretty good childhood. He struggled in some subjects in school, particularly math and reading. He was an athletic child who played sports and made friends fairly quickly. Seamus had bouts of erectile dysfunction (ED) at a young age, which was not easy to deal with. On the day before his 34th birthday in 2020, he received what he called a “special birthday gift.” That day he had his first appointment with his new endocrinologist, who changed his life.

Sarah Winner is a mother whose son was diagnosed with Klinefelter Syndrome while she was pregnant. A yoga instructor, Sarah lives with her husband, 12-year-old daughter Rylan, and Julian in Naples, Florida. To help raise awareness about 47 XXY and prenatal diagnosis, she is sharing her family’s story to bring more awareness to XXY. Her written story can be found here.

Kristin is the mother of Cass, a 15-year-old boy living in Canada who was recently diagnosed with Klinefelter syndrome. Kristin talks about Cass as a child and his many struggles. From not talking till four years old, dealing with the public education system, watching her child slip thru the cracks, to extreme bullying and countless doctor visits with no answers. Despite all their family’s challenges, Cass has overcome so many of his struggles and found acceptance living with XXY.

Dylan Mathis is a 26-year-old man living in Chicago, Illinois. Dylan found out he had Klinefelter syndrome in high school around 16-17 years old. After graduating from high school, he went to college with a unique education program and excelled with an art major. After dating the love of his life, he recently got married to his wonderful wife and works as a cable installer. Dylan talks about his struggles throughout his life and overcoming the challenges, gaining confidence along the way.

Greg is the father of Koa who is an adventurous 2-year-old who loves to skateboard, mountain bike, and be active in nature. Greg talks about his experiences with raising a son who was diagnosed with Klinefelter syndrome and focusing on the things his son can do. Greg’s story is inspirational and paves the way for other fathers to reach out and tell their own stories about raising a son with Klinefelter syndrome.

Tyler is a 34-year-old man who is currently living in San Diego, CA with his wife. Tyler was diagnosed with Klinefelter syndrome at the age of 33 after 1 year of trying to have kids with his wife. After Tyler’s diagnosis, he tried Micro-Tese and was unsuccessful. Tyler talks about how he found Living With XXY’s podcast and how the stories of others helped him with acceptance and moving forward.

Have you ever wondered what someone’s life might be like being on Testosterone Replacement Therapy for the past 23 years and counting? Ryan shares all of his experiences with you from tips about traveling, insurance, pharmacies, and the trial and errors throughout his life. The purpose of this podcast is to help with education and self-advocacy, so others understand what to possibly expect with the many hoops we have to jump thru to keep our testosterone levels within the normal range.

In this episode, Ryan talks about his life battling the ups and downs with personal hygiene. Ryan goes far back to his early years in grade school when his parents used a star chart to build a routine, to now at the age of 36. This in-depth 50-minute podcast might give you a look into some of those boys and men who are Living With XXY and how to overcome their own personal battles with Hygiene. Enjoy

This is a solo podcast talking about how I’ve come to learn about what executive functions are and how they have impacted my life. I only learned what they were from googling them after hearing about it at a conference 5 years ago. I talk about my personal perspectives and how I’ve learned to adapt to make my life easier. I also talk passionately about how raising awareness for Klinefelter syndrome as a community can have a positive impact across the globe.

We had another incredible opportunity to speak to a college class at Hunter College University NYC. The focus of this interview was about self-acceptance with Klinefelter syndrome and engaging with the classes questions. This is how we continue to change the stigma and teach more people about the spectrum of those affected by XXY. Chelsea is a mother to Noah who is three years old and Ryan who was diagnosed in utero 35 years ago and told at the age of 9.

We had the wonderful opportunity to speak to a college class at New York University this last week. The focus of this interview was about self-acceptance with Klinefelter syndrome. Chelsea is a mother to Noah who is three years old and Ryan who was diagnosed in utero 35 years ago and told at the age of 9.

Anna McLeod is the wife of Gareth Landy who was diagnosed with Klinefelter syndrome while trying to have kids. Anna talks about what it was like to learn about her husband’s diagnosis, her own struggles with the diagnosis, and the difficulties of infertility thru IVF. Anna and Gareth are from Ireland and they ventured over to the United Kingdom for their fertility treatments.

Angela Fuller Heyde is the mother of Adam, who was diagnosed with Klinefelter syndrome. She talks about what it is like to go from being secret about her son’s diagnosis to open and sharing information about her son on TikTok. She talks about her fears and how she knew opening up could give back and change other people’s lives.

Jacqueline Lightcap is the mother of a 17-year-old boy diagnosed with Klinefelter syndrome at 14. After a routine physical their family physician thought their son might have Klinefelter syndrome and recommended they see a pediatric endocrinologist. She went to google when she found out her son possibly had Klinefelter syndrome to do some research in 2017. She said, “That can’t be my son, it didn’t describe him in a lot of ways.”

Koben Meausette is a 23-year-old man living in Victoria, British Colombia, Canada. He was diagnosed in utero with Mosaic Klinefelter syndrome and was told around the age of 13. Koben has hiked half of the Pacific Crest Trail. He has an extreme love for the outdoors. Since his passion for camping, hiking, and adventure is deeply rooted, he makes his own packs with his sewing machine as a hobby. Koben shares his life story, his challenges, and how he was able to overcome them.

Jared Pike was diagnosed with Klinefelter syndrome after trying to build a family for many years. After Jared’s doctor gave him the news using horrible bedside manner. Jared was very confused and went into a deep dark depression over the idea that he wasn’t able to father biological children. Jared talks about the rise to acceptance and enjoying life after diagnosis. After multiple failed IUI sperm donor attempts, Jared and his wife found themselves interested in the foster care system.

Christin Pike is the wife of Jared Pike, who was diagnosed with Klinefelter syndrome while trying to have kids after more than three years of trying. She talks about what it was like to learn about her husband’s diagnosis, supporting him thru difficult times, the difficulties of infertility, and learning about foster care and adoption. This is a wonderful story about the struggles we all face and how we can get through them together despite the odds against us all.

Russell Martin is a 47-year-old man diagnosed with Mosaic Klinefelter syndrome 46XY/47XXY. He lives in Tampa, Florida with his wonderful wife and 2 biological sons. Russell was diagnosed when he was 45 years old after he learned about possibly having Klinefelter syndrome at 13 years old. Russell did lots of research on mosaic Klinefelter syndrome and he knew he had it despite the doctors he went to tell him otherwise.

Shelby Herrle is the mother of 1-year-old Paxton who was diagnosed with Klinefelter syndrome 47 XXY at 3 months old. Shelby explains how her NIPT test said she was having a girl and her ultrasound tech then told her she was having a boy. Paxton is meeting all of his milestones on time and is the happiest baby who smiles and laughs at everyone.

Eli Bucksbaum is a 21-year-old college student living in Denver, Colorado. Eli talks about what it was like being told at 6 years old and about his life growing up. Eli talks about how acceptance with having Klinefelter syndrome has helped him live a much happier life, not dwelling on what he cant do and focusing on what his possibilities are. He is an art major, and currently is showing art in new york city.

Daniel Hellinger is a 30-year-old man living in Seattle, Washington. He has traveled the globe over his lifetime and has also been a part of The Peace Corps. Daniel found out about Klinefelter syndrome when he was diagnosed at 24. Dan talks about what life was like before and after his diagnosis and how testosterone replacement therapy has been a huge help to improve his life quality.

Josh Stanhope is the father of Noah (age 3) who was diagnosed prenatally with Klinefelter syndrome (47 XXY). Josh talks about his journey of learning and understanding what a diagnosis of Klinefelter Syndrome meant. Josh talks about how finding the community of Living with XXY helped ease their fears and better understand Klinefelter Syndrome.

Alex Hyatt smiling while hiking in colorado

Alex is a 34-year-old man with Klinefelter Syndrome. Self-described ginger, with a bright smile, and infectious laugh. When he joined the Peace Corps, he was excited to be assigned to Rwanda, which is in East Africa. The experience wasn’t exactly what he was hoping for when he was struck by a series of mysterious, debilitating symptoms.

Between the age of 16 and 17, he was diagnosed with Klinefelter syndrome. Anthony is 20 years old, and 3 weeks out of post opp for gynecomastia surgery. Anthony says “after every thunderstorm, there is a rainbow” and you have to keep on learning and enjoying life.

Mike Christoff’s behind the scenes interview from our first documentary series called “PERSISTENCE”. Mike talks about his life before his Klinefelter syndrome diagnosis and how it affected him afterward. He became the victim, and how it wasn’t until his failed marriage he learned to focus on the positive.

Chelsea Castonguay is a mother with a 3 year old son who has Klinefelter syndrome. Noah was diagnosed in utero after Chelsea felt like something was off around 13 weeks and requested a NIPT. Chelsea talks about how she was devastated learning her son would have Klinefelter syndrome.

Angela Plaisance is the wife of Charlie Plaisance who was diagnosed with Klinefelter syndrome while trying to build a family together. Angela talks about what it was like from a spouse’s perspective upon receiving the news about her husband’s diagnosis.

In 2015, Niall started researching to find out why he had smaller testicles. After investigation, Niall was certain he had Klinefelter syndrome. When reading about the possibility of infertility, he was gutted and stopped all research. In 2018 Niall’s girlfriend Isabel pushed him to go get tested.

Ryan Bregante and Greg Brimhall started talking shortly after Ryan made his first youtube video in 2017. After years of talking they were finally able to meet in person in October of 2020. After recording a podcast together a few episodes ago they both continued to chat.

Ryan now 31, learned about his Klinefelter syndrome diagnosis around the age of 10-12 years old. His parents found out before he was born. Ryan and Leah met online and dated for 2 years before getting engaged and later married. Ryan is a successful welder by trade.

Gareth Landy was diagnosed with Klinefelter syndrome while trying to start a family with his wife who also has multiple sclerosis. After hitting a dead-end, Gareth remained positive. With the help of a sperm donor, his wife went thru 3 rounds of IVF before falling pregnant with twins.

Greg Brimhall found out at the age of 15 when his family decided to switch primary care doctors. After finding out his parents told him not to say anything about his condition. Two years later, he ignored his parent’s suggestion and learned self-acceptance. Greg on Instagram @titan_o_terrror

Brandon and his wife with his dogs smiling

Brandon age 36 found out about his diagnosis at the time of his engagement at 32 years old. He talks about how he just feels just like any other guy out there and how XXY has not held him back from living life. Danae offers some insight from a spouse’s perspective.

Dan Mooney was diagnosed with Klinefelter syndrome at the age of 19 when he had a hernia and his doctors noticed his testicle size was really small. Dan talks about how testosterone has helped him with his mental health and being able to build muscle.

Carson talks about her son LJ and everything she had to do to get her son early intervention. Which would eventually lead to a Klinefelter syndrome/47 XXY diagnosis. Carson started to notice her son’s gross motor skill delay at 4 months.

Michael Palumbo is an electroacoustic music improviser, teacher, and developer. He is building a VR-based music synthesizer and programming environment called “Mischmasch” going towards part of his PhD.

Brett Jones 24 years old and his mother talking about what it was like for Brett to get diagnosed in High School at 17 years old. April knew something was up when Brett was in the first grade.

Richard who was diagnosed at the age of 16 is now 71 years old. He started delivering newspapers as a teenager. With a degree in business he worked his way up to become a CFO.

Cresta is the mother of Cole who is 2 years old and was diagnosed with Klinefelter syndrome thru a NIPT. She decided to change her career to become a genetic counselor.

Angela and David Heyde were faced with overwhelming emotions as their doctor knew nothing about Klinefelter syndrome. They went to google looking for answers.

Mike Christoff found out he had Klinefelter syndrome at 27 when he was trying to have kids with his first wife. Mike has a BS in graphic design and works as a UX designer.

Marci Tatham, the mother of Jack (Age 2), talks about Jack’s early intervention and her family’s overall approach to raising their son with Klinefelter syndrome.

Matt Tatham, the father of Jack (age 2) shares his journey of fully accepting and embracing Jack’s unique personality & interests. Matt embraces Jack’s Klinefelter syndrome.

Stefan was diagnosed with Mosaic Klinefelter syndrome in 1996 at 26 years old. He has been a strong advocate. Here is his website. We are glad to have him on the show.

All about nature, free play, and how it has helped Kat’s son Leo who is three years old and has XXY. I began thinking over our journey and our introduction to Free Forest School.

Evan Flores got married to Sabrina in 2010. After 4 years of trying to have a family, they decided to go in for testing. Evan was diagnosed with Klinefelter syndrome

Geoff Kruck 42 years old, found out the hard way he had Klinefelter syndrome. When he got married to his wife, he didn’t have an overbearing desire to have children.

Richard and Rosalie Bregante share information on what it was like to raise their son who was born in 1985 when information for Klinefelter syndrome was very limited.

Andrew was diagnosed with Klinefelter syndrome at the age of 16 after waking up one morning saying his testicles were hurting. Several doctor visits later he found out why.

Ryan Bregante talks about growing up and going through grade school and middle school. From bullying to believing in himself and self-advocating.

What high school like for Ryan Bregante and how he coped with bullying due to being a slow reader. Having an IEP and learning difficulties.

Kelsey was diagnosed with Klinefelter syndrome at 27 years old while trying to build a family. Kelsey talks about when doctors told him he would not be able to have kids