XXY Podcast
PROFESSIONALLY CURATED PODCASTS ON LIFE, SELF ADVOCACY & GENERAL HEALTH
Welcome to our XXY Podcasts. Our XXY Podcasts are produced and recorded by our president and founder Ryan Bregante. He runs the entire Non-Profit from a spare bedroom in his house. The XXY Podcasts series has given people a voice from all over the world to share their personal experiences about how Klinefelter syndrome has impacted their life. From adult men to mothers we offer a personal insight into our community never spoken about in so much detail before. XXY Podcasts can be found on many of the popular podcasting sites like Apple Podcasts, Anchor.fm, Spotify, and many more.
Toby Voige, age 15, shares his experience from his recent trip to Denver, Colorado, while participating in research. The Lipids to Fat study aims to see how boys with XXY bodies use fat as an energy source. Dr Shanlee Davis is the lead on this research. If you want to learn more, please click the provided link and watch the video. If you want to learn more, please click here.
Deepak Kamnani family is originally from India. He was born in Brooklyn and raised in West Texas. At age 28, he and his wife started trying to have kids. After visiting over 14 doctors, many told him he didn’t fit the stereotype of having Klinefelter syndrome. At 43, he’s decided to share his story to make a difference. He says, “It’s been a journey.”
Grace Hatton is the mother to four beautiful children. She received Non-invasive prenatal testing (NIPT) with her youngest son. After a personal phone call revealing the diagnosis from her doctor, they both were excited. She felt a sense of calm and comfort in her son’s XXY diagnosis and knew she could handle it.
Welcome to our first-ever father-and-son podcast!
Michael Bouley is a fantastic dad to Hunter Bouley, age 21. Hunter was born with club foot affecting one leg, which led the doctors to think something else was happening. Around puberty, Hunter was diagnosed with XXY, and things started to make sense as to why he struggled in school with comprehension, math, and physical development.
In the 7th grade, he went from homeschooling to public school for the first time. Despite being bullied for looking different over time, it taught Hunter to focus on his goals regardless of the setbacks he faced. Hunter has worked hard his entire life to overcome his challenges.
His Instagram shows a well-defined muscular man who has devoted his life to nutrition and working out. He drives a forklift at a lumber yard using his visual memory while working with his hands. He loves hanging out with his family and large-mouth bass fishing.
Despite having trouble with expressive language, Hunter knew sharing his story would help others know they are not alone.
Hunters Instagram: @hunters.fp
Toby Voige joined track and field at his local high school. Nervous about his first race, Gareth found out and sent his mother this incredible pick-me-up voice message. This is what supporting each other is all about and why being open about having XXY is essential. Positive support from our peers is another thing that makes this community incredible.
Surprise! It’s a boy! It was a huge surprise and blessing when Allison discovered she was pregnant at 36. After spending much of her adult life not thinking she would have children naturally, she had all but thought that a child of her own would not be a part of her life journey. But then came Theodore, a beautiful and healthy baby boy born with a unique chromosomal variation, XXY.
Allison, now 38, and Theodore, now 20 months, want to share their journey through NIPT testing, diagnosis, early hormone intervention, and meeting with a team of specialists to help other parents curious about what that first year of life can look like for parents of a child with XXY, and to ease some of the stress around the unknowns.
“At the end of the day, Theo is just like any other kid, and it’s up to me, as his parent, to set him up for success and to support him in his journey so he knows that no matter what challenges and obstacles he may face, he has a team of people behind him and cheering for him. I want him to grow up and be proud of who he is, and I wanted to share his story because I know that somewhere, someone needs to hear it and know that everything will be okay.” Allison’s Instagram: @abpatrick
Antoni Strzelecki, who is from Australia, discovered he had azoospermia. The doctors ordered more testing, and he later found out he had Klinefelter syndrome. After two years of trying to learn and process who he is, he has decided to share his story to help other men like him not feel alone with this diagnosis.
Russell Martin is the first person we know to be able to have kids without medical interventions. After his two boys were all grown up, Russell was diagnosed with mosaic Klinefelter syndrome in his mid-40s.
After extensive research on mosaic XXY, even after his doctors told him there was no way he could have XXY, a karyotype test years later revealed he did. What is Mosaic Klinefelter syndrome? Klinefelter mosaics (47, XXY/46, XY) are less severely affected, and the chance of finding sperm in the ejaculate in these males is significantly higher than in nonmosaic (47, XXY) cases.
Scott Stapley got married in 2013, and two years later, after trying for kids, he and his wife realized they needed to get tested. After a sperm sample yielded nothing, Scott went to a urologist who recommended genetic testing. Finding out he had Klinefelter syndrome, he tried Micro-Tese surgery shortly after.
Nathan Johns started trying for kids around 28 years old. After trying for over a year and nothing, he went in for testing. He was told he had a low sperm count and low testosterone, but no further testing was done. After his first marriage failed, he met his second wife, knowing he couldn’t have kids. Nathan ended up using embryo adoption and later learned he had Klinefelter syndrome.
Charlie Plaisance got married when he was 27. After trying for some time, he and his wife decided to get testing done. After giving a sperm sample, Charlie learned he had three immobile sperm and later found out he would be diagnosed with Klinefelter syndrome (47 XXY). Charlie and his wife ended up trying Micro-Tese and IVF, which was a success. They have three kids.
This podcast is from a recent speaking engagement at New York University. The class is Applied Psychology, and the course is Sexual Identities Across the Lifespan. Ryan Bregante was born with Klinefelter syndrome and is the founder and president of Living with XXY. Kelsey Fuglsby is a mother to a 13-year-old boy, Elliott, who was diagnosed with XXY after birth.
Ted Clark was concerned about the size of his testicles when his girlfriend, a nurse, said they appeared smaller. He went to the doctor with his concerns, his doctor said there might be a tumor in his brain suppressing the growth. Ted discovered he has Mosaic Klinefelter syndrome (47 XXY). Ted shares the details of his fertility journey. After a successful Micro-Tese and IVF, he now has a beautiful daughter.
Richard Martinez jumps right into sharing the details about his life while trying to have kids with his wife. Many questions came up on why nothing was happening. After a diagnosis of Klinefelter syndrome (47 XXY), Richard and his wife went with donor sperm. Richard shares his personal experience about his diagnosis and why sharing your story matters. They have two twin girls.
Matt Dalley is 25 years old and living in Provo, Utah. After getting married at 21, Matt and his wife Katie wanted to be young parents. A year of trying with no luck led the doctors to start testing his wife. Matt ended up going to the doctor with a varicose vein in his scrotum, which led him to a sperm test. Ultimately finding out that he had Klinefelter syndrome.
Ryan Turesson is from Brisbane, Australia. In 2007, he was trying for kids with his partner. Nothing was happening, so she went in for fertility testing. Ryan went in for testing and later discovered he had Klinefelter syndrome. Learning he was sterile and couldn’t have kids was devastating, sending him into a dark depression. They decided to do donor sperm. Ryan is the father of two boys.
Yvette Maano is the mother of a young boy named Sammy. During her pregnancy, she was flagged for her baby boy having Klinefelter syndrome. After her diagnosis, her doctor handed her outdated information and asked if she wanted an abortion. After she declined, her doctor asked her if she was sure about her decision which left her feeling frustrated that she wasn’t making a good decision.
Ariel Ze’evi might be the first man to share his story openly with the world from Israel. Ariel was diagnosed with Klinefelter syndrome while trying to create a family with his wife. He hid his diagnosis from family and friends for many years. After a successful Micro-Tese surgery and two beautiful boys, Ariel speaks out to break the stigma.
Jared Pike was diagnosed with Klinefelter syndrome nearly 10 years ago while trying to have kids. After trying for more than five years and multiple sperm tests, a new doctor suggested doing a Karyotype. With his wife’s support, Jared decided to take a year off from their fertility journey to process, understand, learn and grieve his new diagnosis.
Jake Gray, at the age of 25, found out about his XXY diagnosis while his wife was being tested for some health concerns. The doctor wanted to try Jake for fertility since his wife was flagged for FMA. At 25, he was in shock and denial about his diagnosis. Now 27, Jake is a new father to a baby boy after choosing to use donor sperm.
Sierra Westley Wilson became pregnant at 27, she wanted to know the gender of their baby, so they did NIPT, and they were told they had a 36% chance of their baby having Klinefelter syndrome. Once her son was born, they did a routine blood draw, and two weeks later, they learned their son had 48, XXXY.
Jennifer Fritz Voige spent eight agonizing years trying to find her son’s Klinefelter syndrome diagnosis. At the age of 5, Toby started to show challenges after they took away his nap. In kindergarten, his teachers noticed some blank stares and let Jennifer know something might be happening. This was the start of their long journey.
Jose Ferreira was diagnosed with Klinefelter syndrome while trying to have kids with his wife. A doctor gave them a blood test, and Jose had no idea what XXY was. After learning he was infertile, he experienced mixed emotions and finally realized there was some answer to knowing why he was different. He never thought it was related to his diagnosis.
Whitney Lance received a prenatal diagnosis of Klinefelter syndrome via email from the hospital after a NIPT. In big red letters, it read XXY. Her doctor urged her to see a geneticist, and Whitney panicked and went to google. The geneticist printed information directly from google and didn’t have much more information to share.
Bradford Stucki was diagnosed with Klinefelter syndrome/47 XXY while trying to create a family with his wife. After his diagnosis, their quest to create a family turned to adoption. Despite his diagnosis, Bradford went on to earn his Ph.D. in Human Development and Family Science.
Bradford is a Licensed Marriage and family therapist with 7+ years of experience working with individuals, couples, parents, children (ages 5-12), and families with many relationships and mental health challenges. https://www.bridgehopefamilytherapy.com/
Matthew Keller is a 21-year-old man born and raised in Texas. Matthew was diagnosed with Klinefelter syndrome in high school at 17 years old. After diagnosis, he became angry and didn’t want to understand his diagnosis. Learning he was infertile, his family offered to try Micro-TESE (a procedure that takes sperm directly from the testicular tissue of a man’s reproductive system). Now that Matthew fully accepts his diagnosis, he wants to help other men and boys with XXY to accept themselves and share their own stories to help others!
Taylor Bernstein is a 25-year-old man living alone in Nashville, Tennessee. Taylor was diagnosed in utero since his mother was in the high-risk age category. Taylor talks about what it was like growing up knowing about having Klinefelter syndrome. Despite his struggles, he has accepted and challenged anyone who says he can’t do something. Since moving to Nashville, Taylor started his own company, a personal driving business, and has become very successful. Taylor is very in tune with who he is, how he learns, and what he has to do to break the stigma surrounding XXY.
Luke Breard is a 29-year-old man living in Baton Rouge, Louisiana. When he and his wife could not conceive, they discovered he had an unknown diagnosis. Luke has been living his entire life with Klinefelter syndrome. This is the story of Luke’s XXY diagnosis and how he became an adoptive father to two incredible boys.
Rodrigo Marron was diagnosed with Klinefelter syndrome/47 XXY in February of 2022 at 32 years old after one and a half years of trying for a baby,. Feeling alone and isolated with a diagnosis no one had ever heard about, his wife spent many hours researching to find something to give them a glimmer of hope. Rodrigo was born in Mexico City and moved to Texas as a young child. He talks about his life growing up and some of the challenges of high school, poor grades, and awkward gym class. He went to college to become an architect. Rodrigo shares his story in hopes others will share theirs to help normalize XXY.
Tyler Deur is the father of four-month-old Jax, who was diagnosed with Klinefelter syndrome prenatally. Tyler and his wife decided to do NIPT testing to find out the sex of their baby for a gender reveal party. A doctor’s phone call changed everything, and a new journey started to form. Jax is their first child and the love of their life. Tyler talks about their entire journey and how they have embraced their son’s XXY diagnosis. Very rarely we get to hear a father’s perspective
Carissa Holloway is the mother of Hudson, who is four years old and was diagnosed with Klinefelter syndrome at the age of 2. Hudson’s diagnosis came after they were searching for answers to his respiratory issues and frequent illnesses. After their doctors did a microarray around 2, they learned their son had Klinefelter syndrome, 47 XXY. This was a very unexpected diagnosis for their family. If you would like to purchase a bracelet, click HERE.
Seamus Denison is from Sydney, Australia, recognized he had a pretty good childhood. He struggled in some subjects in school, particularly math and reading. He was an athletic child who played sports and made friends fairly quickly. Seamus had bouts of erectile dysfunction (ED) at a young age, which was not easy to deal with. On the day before his 34th birthday in 2020, he received what he called a “special birthday gift.” That day he had his first appointment with his new endocrinologist, who changed his life.
Sarah Winner is a mother whose son was diagnosed with Klinefelter Syndrome while she was pregnant. A yoga instructor, Sarah lives with her husband, 12-year-old daughter Rylan, and Julian in Naples, Florida. To help raise awareness about 47 XXY and prenatal diagnosis, she is sharing her family’s story to bring more awareness to XXY. Her written story can be found here.
Kristin Lindsay Brisebois is the mother of Cass, a 15-year-old boy living in Canada who was recently diagnosed with Klinefelter syndrome. Kristin talks about Cass as a child and his many struggles. From not talking till four years old, dealing with the public education system, watching her child slip thru the cracks, to extreme bullying and countless doctor visits with no answers. Despite all their family’s challenges, Cass has overcome so many of his struggles and found acceptance living with XXY.
Dylan Mathis is a 26-year-old man living in Chicago, Illinois. Dylan found out he had Klinefelter syndrome in high school around 16-17 years old. After graduating from high school, he went to college with a unique education program and excelled with an art major. After dating the love of his life, he recently got married to his wonderful wife and works as a cable installer. Dylan talks about his struggles throughout his life and overcoming the challenges, gaining confidence along the way.
Greg Coffin is the father of Koa who is an adventurous 2-year-old who loves to skateboard, mountain bike, and be active in nature. Greg talks about his experiences with raising a son who was diagnosed with Klinefelter syndrome and focusing on the things his son can do. Greg’s story is inspirational and paves the way for other fathers to reach out and tell their own stories about raising a son with Klinefelter syndrome.
Tyler Indermill is a 34-year-old man who is currently living in San Diego, CA with his wife. Tyler was diagnosed with Klinefelter syndrome at the age of 33 after 1 year of trying to have kids with his wife. After Tyler’s diagnosis, he tried Micro-Tese and was unsuccessful. Tyler talks about how he found Living With XXY’s podcast and how the stories of others helped him with acceptance and moving forward.
Have you ever wondered what someone’s life might be like being on Testosterone Replacement Therapy for the past 23 years and counting? Ryan shares all of his experiences with you from tips about traveling, insurance, pharmacies, and the trial and errors throughout his life. The purpose of this podcast is to help with education and self-advocacy, so others understand what to possibly expect with the many hoops we have to jump thru to keep our testosterone levels within the normal range.
In this episode, Ryan talks about his life battling the ups and downs with personal hygiene. Ryan goes far back to his early years in grade school when his parents used a star chart to build a routine, to now at the age of 36. This in-depth 50-minute podcast might give you a look into some of those boys and men who are Living With XXY and how to overcome their own personal battles with Hygiene. Enjoy
This is a solo podcast talking about how I’ve come to learn about what executive functions are and how they have impacted my life. I only learned what they were from googling them after hearing about it at a conference 5 years ago. I talk about my personal perspectives and how I’ve learned to adapt to make my life easier. I also talk passionately about how raising awareness for Klinefelter syndrome as a community can have a positive impact across the globe.
We had another incredible opportunity to speak to a college class at Hunter College University NYC. The focus of this interview was about self-acceptance with Klinefelter syndrome and engaging with the classes questions. This is how we continue to change the stigma and teach more people about the spectrum of those affected by XXY. Chelsea is a mother to Noah who is three years old and Ryan who was diagnosed in utero 35 years ago and told at the age of 9.
We had the wonderful opportunity to speak to a college class at New York University this last week. The focus of this interview was about self-acceptance with Klinefelter syndrome. Chelsea is a mother to Noah who is three years old and Ryan who was diagnosed in utero 35 years ago and told at the age of 9.
Anna McLeod is the wife of Gareth Landy who was diagnosed with Klinefelter syndrome while trying to have kids. Anna talks about what it was like to learn about her husband’s diagnosis, her own struggles with the diagnosis, and the difficulties of infertility thru IVF. Anna and Gareth are from Ireland and they ventured over to the United Kingdom for their fertility treatments.
Angela Fuller Heyde is the mother of Adam, who was diagnosed with Klinefelter syndrome. She talks about what it is like to go from being secret about her son’s diagnosis to open and sharing information about her son on TikTok. She talks about her fears and how she knew opening up could give back and change other people’s lives.
Jacqueline Lightcap is the mother of a 17-year-old boy diagnosed with Klinefelter syndrome at 14. After a routine physical their family physician thought their son might have Klinefelter syndrome and recommended they see a pediatric endocrinologist. She went to google when she found out her son possibly had Klinefelter syndrome to do some research in 2017. She said, “That can’t be my son, it didn’t describe him in a lot of ways.”
Koben Meausette is a 23-year-old man living in Victoria, British Colombia, Canada. He was diagnosed in utero with Mosaic Klinefelter syndrome and was told around the age of 13. Koben has hiked half of the Pacific Crest Trail. He has an extreme love for the outdoors. Since his passion for camping, hiking, and adventure is deeply rooted, he makes his own packs with his sewing machine as a hobby. Koben shares his life story, his challenges, and how he was able to overcome them.
Jared Pike was diagnosed with Klinefelter syndrome after trying to build a family for many years. After Jared’s doctor gave him the news using horrible bedside manner. Jared was very confused and went into a deep dark depression over the idea that he wasn’t able to father biological children. Jared talks about the rise to acceptance and enjoying life after diagnosis. After multiple failed IUI sperm donor attempts, Jared and his wife found themselves interested in the foster care system.
Christin Pike is the wife of Jared Pike, who was diagnosed with Klinefelter syndrome while trying to have kids after more than three years of trying. She talks about what it was like to learn about her husband’s diagnosis, supporting him thru difficult times, the difficulties of infertility, and learning about foster care and adoption. This is a wonderful story about the struggles we all face and how we can get through them together despite the odds against us all.
Russell Martin is a 47-year-old man diagnosed with Mosaic Klinefelter syndrome 46XY/47XXY. He lives in Tampa, Florida with his wonderful wife and 2 biological sons. Russell was diagnosed when he was 45 years old after he learned about possibly having Klinefelter syndrome at 13 years old. Russell did lots of research on mosaic Klinefelter syndrome and he knew he had it despite the doctors he went to tell him otherwise.
Shelby Herrle is the mother of 1-year-old Paxton who was diagnosed with Klinefelter syndrome 47 XXY at 3 months old. Shelby explains how her NIPT test said she was having a girl and her ultrasound tech then told her she was having a boy. Paxton is meeting all of his milestones on time and is the happiest baby who smiles and laughs at everyone.
Eli Bucksbaum is a 21-year-old college student living in Denver, Colorado. Eli talks about what it was like being told at 6 years old and about his life growing up. Eli talks about how acceptance with having Klinefelter syndrome has helped him live a much happier life, not dwelling on what he cant do and focusing on what his possibilities are. He is an art major, and currently is showing art in new york city.
Daniel Hellinger is a 30-year-old man living in Seattle, Washington. He has traveled the globe over his lifetime and has also been a part of The Peace Corps. Daniel found out about Klinefelter syndrome when he was diagnosed at 24. Dan talks about what life was like before and after his diagnosis and how testosterone replacement therapy has been a huge help to improve his life quality.
Josh Stanhope is the father of Noah (age 3) who was diagnosed prenatally with Klinefelter syndrome (47 XXY). Josh talks about his journey of learning and understanding what a diagnosis of Klinefelter Syndrome meant. Josh talks about how finding the community of Living with XXY helped ease their fears and better understand Klinefelter Syndrome.
Alex Hyatt is a 34-year-old man with Klinefelter Syndrome. Self-described ginger, with a bright smile, and infectious laugh. When he joined the Peace Corps, he was excited to be assigned to Rwanda, which is in East Africa. The experience wasn’t exactly what he was hoping for when he was struck by a series of mysterious, debilitating symptoms.
Mike Christoff’s behind the scenes interview from our first documentary series called “PERSISTENCE”. Mike talks about his life before his Klinefelter syndrome diagnosis and how it affected him afterward. He became the victim, and how it wasn’t until his failed marriage he learned to focus on the positive.
Niall Barry started researching to find out why he had smaller testicles in 2015. After investigation, Niall was certain he had Klinefelter syndrome. When reading about the possibility of infertility, he was gutted and stopped all research. In 2018 Niall’s girlfriend Isabel pushed him to go get tested.
Stefan Schwarz was diagnosed with Mosaic Klinefelter syndrome in 1996 at 26 years old. He has been a strong advocate. Here is his website. We are glad to have him on the show.
Ryan Bregante talks about growing up and going through grade school and middle school. From bullying to believing in himself and self-advocating.
Also Available On
Our podcast content is on the following platforms:
