This is a solo podcast talking about how I’ve come to learn about what executive functions are and how they have impacted my life. I only learned what they were from googling them after hearing about it at a conference 5 years ago.  I talk about my personal perspectives and how I’ve learned to adapt to make my life easier.  I also talk passionately about how raising awareness for Klinefelter syndrome as a community can have a positive impact across the globe.

We had another incredible opportunity to speak to a college class at Hunter College University NYC. The focus of this interview was about self-acceptance with Klinefelter syndrome and engaging with the classes questions. This is how we continue to change the stigma and teach more people about the spectrum of those affected by XXY. Chelsea is a mother to Noah who is three years old and Ryan who was diagnosed in utero 35 years ago and told at the age of 9.

We had the wonderful opportunity to speak to a college class at New York University this last week. The focus of this interview was about self-acceptance with Klinefelter syndrome. Chelsea is a mother to Noah who is three years old and Ryan who was diagnosed in utero 35 years ago and told at the age of 9.

Anna McLeod is the wife of Gareth Landy who was diagnosed with Klinefelter syndrome while trying to have kids. Anna talks about what it was like to learn about her husband’s diagnosis, her own struggles with the diagnosis, and the difficulties of infertility thru IVF. Anna and Gareth are from Ireland and they ventured over to the United Kingdom for their fertility treatments.

Angela Fuller Heyde is the mother of Adam, who was diagnosed with Klinefelter syndrome. She talks about what it is like to go from being secret about her son’s diagnosis to open and sharing information about her son on TikTok. She talks about her fears and how she knew opening up could give back and change other people’s lives.

Jacqueline Lightcap is the mother of a 17-year-old boy diagnosed with Klinefelter syndrome at 14. After a routine physical their family physician thought their son might have Klinefelter syndrome and recommended they see a pediatric endocrinologist.  She went to google when she found out her son possibly had Klinefelter syndrome to do some research in 2017. She said, “That can’t be my son, it didn’t describe him in a lot of ways.”

Koben Meausette is a 23-year-old man living in Victoria, British Colombia, Canada. He was diagnosed in utero with Mosaic Klinefelter syndrome and was told around the age of 13. Koben has hiked half of the Pacific Crest Trail. He has an extreme love for the outdoors. Since his passion for camping, hiking, and adventure is deeply rooted, he makes his own packs with his sewing machine as a hobby. Koben shares his life story, his challenges, and how he was able to overcome them.

 Jared Pike was diagnosed with Klinefelter syndrome after trying to build a family for many years. After Jared’s doctor gave him the news using horrible bedside manner. Jared was very confused and went into a deep dark depression over the idea that he wasn’t able to father biological children.  Jared talks about the rise to acceptance and enjoying life after diagnosis.  After multiple failed IUI sperm donor attempts, Jared and his wife found themselves interested in the foster care system.

Christin Pike is the wife of Jared Pike, who was diagnosed with Klinefelter syndrome while trying to have kids after more than three years of trying.  She talks about what it was like to learn about her husband’s diagnosis, supporting him thru difficult times, the difficulties of infertility, and learning about foster care and adoption. This is a wonderful story about the struggles we all face and how we can get through them together despite the odds against us all.

Russell Martin is a 47-year-old man diagnosed with Mosaic Klinefelter syndrome 46XY/47XXY. He lives in Tampa, Florida with his wonderful wife and 2 biological sons.  Russell was diagnosed when he was 45 years old after he learned about possibly having Klinefelter syndrome at 13 years old.  Russell did lots of research on mosaic Klinefelter syndrome and he knew he had it despite the doctors he went to tell him otherwise.

Shelby Herrle is the mother of 1-year-old Paxton who was diagnosed with Klinefelter syndrome 47 XXY at 3 months old. Shelby explains how her NIPT test said she was having a girl and her ultrasound tech then told her she was having a boy. Paxton is meeting all of his milestones on time and is the happiest baby who smiles and laughs at everyone.

Eli Bucksbaum is a 21-year-old college student living in Denver, Colorado. Eli talks about what it was like being told at 6 years old and about his life growing up. Eli talks about how acceptance with having Klinefelter syndrome has helped him live a much happier life, not dwelling on what he cant do and focusing on what his possibilities are. He is an art major, and currently is showing art in new york city.

Daniel Hellinger is a 30-year-old man living in Seattle, Washington. He has traveled the globe over his lifetime and has also been a part of The Peace Corps. Daniel found out about Klinefelter syndrome when he was diagnosed at 24.  Dan talks about what life was like before and after his diagnosis and how testosterone replacement therapy has been a huge help to improve his life quality.

Josh Stanhope is the father of Noah (age 3) who was diagnosed prenatally with Klinefelter syndrome (47 XXY). Josh talks about his journey of learning and understanding what a diagnosis of Klinefelter Syndrome meant.  Josh talks about how finding the community of Living with XXY helped ease their fears and better understand Klinefelter Syndrome.

Alex is a 34-year-old man with Klinefelter Syndrome. Self-described ginger, with a bright smile, and infectious laugh. When he joined the Peace Corps, he was excited to be assigned to Rwanda, which is in East Africa. The experience wasn’t exactly what he was hoping for when he was struck by a series of mysterious, debilitating symptoms.

 Between the age of 16 and 17, he was diagnosed with Klinefelter syndrome.  Anthony is 20 years old, and 3 weeks out of post opp for gynecomastia surgery.  Anthony says “after every thunderstorm, there is a rainbow” and you have to keep on learning and enjoying life.

Mike Christoff’s behind the scenes interview from our first documentary series called “PERSISTENCE”. Mike talks about his life before his Klinefelter syndrome diagnosis and how it affected him afterward. He became the victim, and how it wasn’t until his failed marriage he learned to focus on the positive.

Chelsea Castonguay is a mother with a 3 year old son who has Klinefelter syndrome. Noah was diagnosed in utero after Chelsea felt like something was off around 13 weeks and requested a NIPT. Chelsea talks about how she was devastated learning her son would have Klinefelter syndrome.

Angela Plaisance is the wife of Charlie Plaisance who was diagnosed with Klinefelter syndrome while trying to build a family together. Angela talks about what it was like from a spouse’s perspective upon receiving the news about her husband’s diagnosis.

In 2015, Niall started researching to find out why he had smaller testicles. After investigation, Niall was certain he had Klinefelter syndrome. When reading about the possibility of infertility, he was gutted and stopped all research. In 2018 Niall’s girlfriend Isabel pushed him to go get tested.

Ryan Bregante and Greg Brimhall started talking shortly after Ryan made his first youtube video in 2017. After years of talking they were finally able to meet in person in October of 2020. After recording a podcast together a few episodes ago they both continued to chat.

Gareth Landy was diagnosed with Klinefelter syndrome while trying to start a family with his wife who also has multiple sclerosis. After hitting a dead-end, Gareth remained positive. With the help of a sperm donor, his wife went thru 3 rounds of IVF before falling pregnant with twins.