THE ARCHIVE
Welcome to our Non-Profit’s Klinefelter syndrome blog series. We are dedicated to giving people all over the world a safe space to share their stories. Living With XXY is changing the way the world views Klinefelter syndrome (47 XXY). Our community is growing fast as people focus on spreading awareness and learn to focus on the positive traits. Our Klinefelter syndrome blog series offers a wide rage of stories and information. Every week we launch a new story from families experiencing prenatal diagnosis, to parents finding out during the adolescences years, to men finding out after 18 years of age. Please celebrate these incredible stories with us and we hope you will one day feel empowered to share your own.
“Your son has Klinefelter’s Syndrome.”
A Mom’s Tale of XXY: We lived in blissful unawareness until our son was almost 20 in the [...]
They told their son “You’re an X-Man!”
Noelle Davidson is the mother of an eight-year-old son with Klinefelter Syndrome (KS), or 47, XXY. The family lives [...]
Blood work indicated “something was wrong”
Andrea Holdren has a three-year-old Connor, who lives with Klinefelter Syndrome (KS), or 47 XXY. Connor is also autistic. [...]
48 XXXY: The Voice Of Aron Capon
Aron is a 41-year-old man living with a variant of Klinefelter Syndrome (KS), 48 XXXY. Aron resides in [...]
A German Klinefelter Story
This Story was written by a Mum that lives in Germany who has a son with Klinefelter syndrome. [...]
The People Behind Colton’s XXXtraodinarY Cause
48 XXXY More Information By Marybeth Cale This article would not have been possible if it was not [...]
Klinefelter Educations
Klinefelter educations are something people have never even talked about openly on the internet. There are people all [...]
XYY A Missed Diagnosis
XYY A Missed Diagnosis When asked the question, “Tell us about your son’s journey to an XYY diagnosis,” [...]
Our Little Rainbow Baby
Our Little Rainbow Baby. Here’s our story... my husband was 41, and I was 33 when we got [...]
XXY Males – Klinefelter Syndrome
XXY Males – Klinefelter syndrome HEALTH TOPIC BY GLENDA FAUNTLEROY DEC 2012 Although considered the most common chromosomal [...]
A human-friendly logo for Klinefelter Syndrome Awareness
Created By EMILIA LOUISA PUCCI UX, INTERACTION & WEARABLE TECHNOLOGY DESIGN Original Content Creator LIVING WITH XXY [...]
Graham’s Klinefelter Syndrome Story
At age 21, Graham loves to spend time on his favorite pastime of writing mysteries and screen plays. [...]
Matthew was diagnosed with XXY at 14.
Matthew the Grill Master My son Matthew is 26 years old and was diagnosed with Klinefelter [...]
The Havoc of an Undetected Extra Chromosome
By JANE E. BRODY AUG. 31, 2004 The New York Times 2004 Sam’s parents began to suspect something was not [...]
Klinefelter’s Syndrome Story
Klinefelter’s syndrome story A loving mother wrote this story of a Klinefelter’s syndrome boy. Two years after our [...]
My Son’s Klinefelter Story (Spanish)
English translation from Spanish I wanted to have an amniocentesis. Although you do it by detecting early any [...]
What To Say When Someone Tells You About Their Son’s XXY Diagnosis
By Chelsea Castonguay In my time working with Living With XXY, there’s been a change in our family. [...]
The Voice Of Dylan Mathis
Written by Chelsea Castonguay Dylan Mathis is a 25-year-old man living with Klinefelter Syndrome (47, XXY). Dylan resides [...]
XXY Syndrome Blood Test
A blood test could have revealed the disorder far earlier The Washington Post, 24 Aug 2010 Years wreaking havoc [...]
Years of misdiagnoses, Lawrence teen found to have little-known disorder.
Original Article by LJWorld Julie and Brandon Urban only wish they had the cards sooner. Then they could [...]
47 XXY Syndrome Awareness
To my surprise, I found out I was pregnant at 45. My husband & I already had 3 children. [...]
Changing The Stigma: A New Perspective
Written By Ryan Bregante To give some context to this blog post, the first part in quotes is [...]
XXY Baby is Born
XXY Baby is born This is to the mothers who are really struggling and not understanding what it [...]
OBGYN Diagnosed Mosaic 47 xxy
Another wonderful story here. May 8th, 2017, is a day I will never forget. It was the due [...]
Our Genetics Counselor Said Most People Terminate Their XXY Pregnancy
By Chelsea Castonguay Karla is a 61-year-old guidance counselor from North Oakland County, Michigan. She’s the mother of [...]
Klinefelter Confidence
What is Klinefelter's confidence, you might be asking yourself? Did you know that most men with Klinefelter syndrome [...]
Many men have an extra X chromosome – but are rarely diagnosed.
The genetic condition is one of the most common in the UK and maybe a leading cause of [...]
The Voice of Armin: Every diagnosis is different
By Chelsea Castonguay Armin is a 29-year-old man with Klinefelter Syndrome from New Zealand, who is of Indian [...]
Mexican Mother’s 47 XXY Story
English translation from Spanish. On June 30, 2008, they called us on the phone to tell us that [...]
The Voice Of Russell Martin
By Chelsea Castonguay with Russell Martin Russell Martin is a 46-year-old man with mosaic Klinefelter Syndrome. He lives [...]
The Voice of Gerald Mynard
By Chelsea Castonguay Gerald Mynard is a vibrant, fast-talking, social media savvy man living with Klinefelter Syndrome. He [...]
A Story about Kyle born with XXY
Kyles XXY Story My son Kyle was born healthy with no complications. He was a delighted, content baby. [...]
Sex Chromosome Disorders
Families have a place to turn for help with sex chromosome disorders. Article By Pam Auchmutey Emory Health [...]
The Voice of Charles Plaisance
Written By: Chelsea Castonguay Charles Plaisance is a 35-year-old man living with Klinefelter Syndrome, or 47XXY. He resides [...]
Mom Vs. Teacher
Mom Vs. Teacher A few details from a “Teacher that is a Mom” regarding my son’s academics and how [...]
Optimistic XXY Mindset
People often ask how I live with the mindset to be an optimistic XXY knowing that I have [...]
Melissa felt “pretty hysterical” when given the news.
Written By: Chelsea Castonguay Melissa and her family live in New York state. She and her husband Ryan [...]
Spanish Mother’s 47 XXY Story
English translation from Spanish. It has been many years since I wrote this message in a forum about [...]
Your Quarterly Newsletter: April 2021
Welcome Home! It’s hard to believe 2021 is soaring by so fast! We’ve been busy and we [...]
Julian is going to be the best baby!
Written By: Chelsea Castonguay Sarah Winner is a mother whose son was diagnosed with Klinefelter Syndrome while she was [...]
A Mother’s Intuition Led to Her Son’s Diagnosis
Written By: Chelsea Castonguay A couple of weeks ago I had the opportunity to sit down with Jaime [...]
The Voice of Jordan Truax
Written By: Chelsea Castonguay Jordan is a 29-year-old man living in Hughesville, Pennsylvania. While currently experiencing unemployment due [...]
The Voice of J.
Written By: Chelsea Castonguay J is a man in his late seventies years who resides in the UK. [...]
The Voice of Drew Gagnon
Written By: Chelsea Castonguay When he was a young boy, Drew knew what he wanted to do with [...]
The Voice of Alex H.
Written By: Chelsea Castonguay Alex is a 34-year-old man with Klinefelter Syndrome living in Centennial, Colorado. He’s a [...]
I was Googling every chance I got!
Written By: An Australian Mother I had to arrange my 13 weeks scan privately and Sydney UltraSound for [...]
Struggle to be a father due to an extra X chromosome
A man who only discovered he had Klinefelter syndrome when he and his wife failed to conceive naturally. [...]
Fears Are Changing Into a Community of Hope
The negatives, stereotypes, limitations, fears and the stigma. We asked the community to share the FAQ they receive [...]
Our Annual Letter for 2020
Dear Living With XXY Community, Let's go back to November 6th, 2019: Living with XXY was born, as [...]
XXYKindaGuy Sam Pierce
XXYKindaGuy: Klinefelter syndrome diagnosis a relief after childhood woes. February 16, 2018 The Courier News Letter Samuel Pierce [...]
After 6 Years of IVF Our Journey Began
Written by: A Mother in Australia Our journey began after 6 years of IVF. I had decided not [...]
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