LIVING WITH XXY ARCHIVE
Welcome to our Non-Profit’s Klinefelter syndrome blog series. We are dedicated to giving people all over the world a safe space to share their stories. Living With XXY is changing the way the world views Klinefelter syndrome (47 XXY). Our community is growing fast as people focus on spreading awareness and learn to focus on the positive traits. Our Klinefelter syndrome blog series offers a wide rage of stories and information. Every week we launch a new story from families experiencing prenatal diagnosis, to parents finding out during the adolescences years, to men finding out after 18 years of age. Please celebrate these incredible stories with us and we hope you will one day feel empowered to share your own.
Puberty Hormones In Klinefelter Syndrome
Hi, everyone. I'm Dr. Shanlee Davis. I'm a pediatric endocrinologist that works at the Children's Hospital, Colorado, and [...]
Klinefelter Diagnosis Stress
The voice of Kasia Olbromska By Chelsea Castonguay Although she was 35 when she became pregnant with her [...]
What to expect when you’re expecting an extra X or Y chromosome
THE ORIGINAL ARTICLE CAN BE FOUND HERE BIOTECHNOLOGYWhat to expect when you’re expecting an extra X or Y [...]
48 XXXY: The Voice Of Aron Capon
Aron is a 41-year-old man living with a variant of Klinefelter Syndrome (KS), 48 XXXY. Aron resides in [...]
Klinefelter Syndrome And Autism
Annette Flannery lives in Maryland with her husband and their son, Ronan. As Annette already had two daughters [...]
Early Prenatal Klinefelter Diagnosis
Early Prenatal Klinefelter Diagnosis: The Voice of Nina Parrott By Jennifer Ramsdell Early Prenatal Klinefelter Diagnosis: At the age [...]
Infant Klinefelter Diagnosis
The voice of Amy Hoffman By Chelsea Castonguay After experiencing years of infertility, Amy and Michael were thrilled to [...]
Klinefelter Man Diagnosis
The voice of Dan Mooney By Chelsea Castonguay Dan Mooney lives in Redmond, Oregon, with his wife and dogs. [...]
Meet Ryan Bregante of Living With XXY
Original article from SDvoyager found Here Today we’d like to introduce you to Ryan Bregante. Hi Ryan, thanks for [...]
A Surprise Klinefelter Pregnancy
A Surprise Klinefelter pregnancy Anne and her husband, Mike, were not expecting to get pregnant seven years after their [...]
A Positive 48 XXXY NIPT
Sharing our 48 XXXY NIPT Results Publically I've hesitated to share our 48 XXXY NIPT publicly for the past [...]
Young Adult Klinefelter Life Story
Young Adult Klinefelter Life Story The voice of Jason Smith By Chelsea Castonguay When Jason was a young teenager, [...]
An Unexpected Klinefelter Diagnosis
An Unexpected Klinefelter Diagnosis By Chelsea Castonguay From birth, Allison* knew there was something different about her son Max*. [...]
A Klinefelter Abortion
The Voice of Ashley Fox By Chelsea Castonguay A Klinefelter Abortion was not an option: When Ashley found out [...]
Teenage Klinefelter diagnosis
The Voice of Kristin Lindsay Brisebois By Chelsea Castonguay Kristin Lindsay resides in Victoria, British Columbia, Canada. She is [...]
Living With Fear “And” XXY
Living With Fear “And” XXY By Tyler Deur Fear is a funny thing. Oftentimes, it can bring out the [...]
A doctor’s son with Klinefelter syndrome
A doctor's son with Klinefelter syndrome: Dr. Emily's story. Dr. Emily was 26 years old when she found [...]
47XXY Adoption Story: George Tomkin’s
A ready-made family: ’ story of adoption. By Kimberly Walker 47XXY Adoption: The story of George Tompkins In [...]
Klinefelter Teen Diagnosis
Klinefelter teen diagnosis: The Voice of Danyelle Keller By Chelsea Castonguay Klinefelter teen diagnosis: As a mom of [...]
Prenatal Diagnosis Klinefelter Baby
Prenatal Diagnosis Klinefelter Baby: The Voice of Ali Garruto By Kimberly Walker Prenatal diagnosis Klinefelter baby: When Ali [...]
Sam’s story
Apr 13, 2021, 4:25 PM Original Article HERE Hi there, I’m Sam. I’m 27 and I got diagnosed [...]
Klinefelter Pregnancy Termination Story
The Voice of Devra Strauss: Klinefelter pregnancy termination By Chelsea Castonguay Devra Strauss lives with her family in [...]
Klinefelter Syndrome Male: Joey Schiffman
Klinefelter Syndrome Male: Joey Schiffman By Kimberly Walker As a child, Joey Schiffman was fascinated by cars; from [...]
Living With XXY 2021 Annual Report
Dear Community, This year was the first year building an annual report; it was extremely challenging and frustrating. [...]
The Voice of Richard Martinez
The Voice of Richard Martinez “All that negative stuff about Klinefelter went out the door. It didn’t matter [...]
The Voice of Ben Henrickson
Ben Henrickson is 22 and resides in Chapel Hill, North Carolina. Diagnosis: Ben was in fifth grade when [...]
Using Donor Sperm: Greg and Katie Duncan
An unexpected diagnosis: Two years after their wedding, Greg and Katie Duncan felt ready to start a family. [...]
The Road To Adoption: Matt Troxler
When Matt Troxler was in kindergarten, he received an unexpected diagnosis. His teacher noticed some symptoms, and encouraged his [...]
Baby Boy Born With Klinefelter XXY
Jaclyn Childers Klinefelter XXY Story Creating life is an incredibly intricate and personal thing. Before knowing the gender of [...]
An XXY Diagnosis: The Voice of Luke Breard
Luke Breard is a 29-year-old man living in Baton Rouge, Louisiana. When he and his wife were unable [...]
Mosaic Klinefelter Syndrome: Stefan Schwarz
Mosaic Klinefelter Syndrome: The Voice of Stefan Schwarz By Kimberly Walker An avid foodie and traveler with Mosaic [...]
She hopes it doesn’t happen to other mothers
"She hopes it doesn't happen to other mothers", Sofia's story. By Chelsea Castonguay Sofia* is the mother of [...]
The Voice of Andrew Curry
The Voice of Andrew Curry By Kimberly Walker Andrew Curry is an Eagle Scout. He lives his life [...]
Finding community with Living with XXY
In case we haven’t met yet, I’m Chelsea, the writing director for Living With XXY. I’m also the [...]
The Voice of Ken Widelski
The Voice of Ken Widelski By Kimberly Walker Ken Widelski believes setting goals and consistency is the key [...]
A Surprise Diagnosis
“This is part of who your son is. He is still your son," - Jacqueline Lightcap's story. By [...]
Lacy and Dan’s Prenatal Diagnosis Story
Dan and Lacy are parents to a baby boy with Klinefelter syndrome. The couple agreed to noninvasive prenatal [...]
The Voice of Nate Biklen
The Voice of Nate Biklen By Kimberly Walker Warm and empathetic by nature, Nate Biklen, a 41-year-old man [...]
The Voice of Geoff Kruck
The Voice of Geoff Kruck By Geoff Kruck and Jill Kruck. Geoff Kruck is 43, and lives with [...]
The Voice of Dave Ruckle
The Voice of Dave Ruckle By Chelsea Castonguay Dave Ruckle is a 48-year-old man living with Klinefelter syndrome. [...]
The Voice of Porter Declan
The Voice of Porter Declan By Kimberly Walker, with Chelsea Castonguay As the old saying goes, “There is [...]
Why Telling Your Story Matters
Why telling your story matters By Chelsea Castonguay In case we haven’t met yet, I’m Chelsea, the writing [...]
Everything is going to be fine: Leah’s story
Leah told her doctor, “If you have to do this again, say ‘Hey! Congratulations you are having a [...]
From Termination to Life: Jenn’s story
From termination to life: Jenn's story By Chelsea Castonguay Editor's note: This is the first in a series [...]
The Voice of Seamus Denison
The Voice of Seamus Denison By Kimberly Walker Editor's note: In spring 2021, Ryan was approached by Emily, [...]
The Voice of Jake Gray
The Voice of Jake Gray By Kimberly Walker Jake Gray has seen and done things at twenty-six that [...]
Klinefelter syndrome: You are worthy
I jumped on Instagram for some mindless scrolling this afternoon, and was excited to see a new video [...]
Life with KS: The voice of Daniel Hellinger
Life with KS: The voice of Daniel Hellinger Daniel Hellinger is a 30-year-old man with mosaic Klinefelter syndrome/KS, [...]
The Voice of Matthew Roseworne
The Voice of Matthew Roseworne Matthew Roseworne was diagnosed at 16 years old with Klinefelter syndrome (KS), or [...]
Living With XXY Response to 1,000-Year-Old Remains May Be Nonbinary
Living With XXY NonProfit 501(c)(3) Charitable Organization Dear XXY Community, We became aware of the NPR, The Guardian, [...]
“Your son has Klinefelter’s Syndrome.”
A Mom’s Tale of XXY: We lived in blissful unawareness until our son was almost 20 in the [...]
They told their son “You’re an X-Man!”
Noelle Davidson is the mother of an eight-year-old son with Klinefelter Syndrome (KS), or 47, XXY. The family lives [...]
Blood work indicated “something was wrong”
Andrea Holdren has a three-year-old Connor, who lives with Klinefelter Syndrome (KS), or 47 XXY. Connor is also autistic. [...]
A German Klinefelter Story
This Story was written by a Mum that lives in Germany who has a son with Klinefelter syndrome. [...]
The People Behind Colton’s XXXtraodinarY Cause
48 XXXY More Information By Marybeth Cale This article would not have been possible if it was not [...]
Klinefelter Educations
Klinefelter educations are something people have never even talked about openly on the internet. There are people all [...]
XYY A Missed Diagnosis
XYY A Missed Diagnosis When asked the question, “Tell us about your son’s journey to an XYY diagnosis,” [...]
Our Little Rainbow Baby
Our Little Rainbow Baby. Here’s our story... my husband was 41, and I was 33 when we got [...]
XXY Males – Klinefelter Syndrome
XXY Males – Klinefelter syndrome HEALTH TOPIC BY GLENDA FAUNTLEROY DEC 2012 Although considered the most common chromosomal [...]
A human-friendly logo for Klinefelter Syndrome Awareness
Created By EMILIA LOUISA PUCCI UX, INTERACTION & WEARABLE TECHNOLOGY DESIGN Original Content Creator LIVING WITH XXY [...]
Graham’s Klinefelter Syndrome Story
At age 21, Graham loves to spend time on his favorite pastime of writing mysteries and screen plays. [...]
Matthew was diagnosed with XXY at 14.
Matthew the Grill Master My son Matthew is 26 years old and was diagnosed with Klinefelter [...]
The Havoc of an Undetected Extra Chromosome
By JANE E. BRODY AUG. 31, 2004 The New York Times 2004 Sam’s parents began to suspect something was not [...]
Klinefelter’s Syndrome Story
Klinefelter’s syndrome story A loving mother wrote this story of a Klinefelter’s syndrome boy. Two years after our [...]
My Son’s Klinefelter Story (Spanish)
English translation from Spanish I wanted to have an amniocentesis. Although you do it by detecting early any [...]
What To Say When Someone Tells You About Their Son’s XXY Diagnosis
By Chelsea Castonguay In my time working with Living With XXY, there’s been a change in our family. [...]
The Voice Of Dylan Mathis
Written by Chelsea Castonguay Dylan Mathis is a 25-year-old man living with Klinefelter Syndrome (47, XXY). Dylan resides [...]
XXY Syndrome Blood Test
A blood test could have revealed the disorder far earlier The Washington Post, 24 Aug 2010 Years wreaking havoc [...]
Years of misdiagnoses, Lawrence teen found to have little-known disorder.
Original Article by LJWorld Julie and Brandon Urban only wish they had the cards sooner. Then they could [...]
47 XXY Syndrome Awareness
To my surprise, I found out I was pregnant at 45. My husband & I already had 3 children. [...]
Changing The Stigma: A New Perspective
Written By Ryan Bregante To give some context to this blog post, the first part in quotes is [...]
XXY Baby is Born
XXY Baby is born This is to the mothers who are really struggling and not understanding what it [...]
OBGYN Diagnosed Mosaic 47 xxy
Another wonderful story here. May 8th, 2017, is a day I will never forget. It was the due [...]
Our Genetics Counselor Said Most People Terminate Their XXY Pregnancy
By Chelsea Castonguay Karla is a 61-year-old guidance counselor from North Oakland County, Michigan. She’s the mother of [...]
Klinefelter Confidence
What is Klinefelter's confidence, you might be asking yourself? Did you know that most men with Klinefelter syndrome [...]
Many men have an extra X chromosome – but are rarely diagnosed.
The genetic condition is one of the most common in the UK and maybe a leading cause of [...]
The Voice of Armin: Every diagnosis is different
By Chelsea Castonguay Armin is a 29-year-old man with Klinefelter Syndrome from New Zealand, who is of Indian [...]
Mexican Mother’s 47 XXY Story
English translation from Spanish. On June 30, 2008, they called us on the phone to tell us that [...]
The Voice Of Russell Martin
By Chelsea Castonguay with Russell Martin Russell Martin is a 46-year-old man with mosaic Klinefelter Syndrome. He lives [...]
The Voice of Gerald Mynard
By Chelsea Castonguay Gerald Mynard is a vibrant, fast-talking, social media savvy man living with Klinefelter Syndrome. He [...]
A Story about Kyle born with XXY
Kyles XXY Story My son Kyle was born healthy with no complications. He was a delighted, content baby. [...]
Sex Chromosome Disorders
Families have a place to turn for help with sex chromosome disorders. Article By Pam Auchmutey Emory Health [...]
The Voice of Charles Plaisance
Written By: Chelsea Castonguay Charles Plaisance is a 35-year-old man living with Klinefelter Syndrome, or 47XXY. He resides [...]
Mom Vs. Teacher
Mom Vs. Teacher A few details from a “Teacher that is a Mom” regarding my son’s academics and how [...]
Optimistic XXY Mindset
People often ask how I live with the mindset to be an optimistic XXY knowing that I have [...]
Melissa felt “pretty hysterical” when given the news.
Written By: Chelsea Castonguay Melissa and her family live in New York state. She and her husband Ryan [...]
Spanish Mother’s 47 XXY Story
English translation from Spanish. It has been many years since I wrote this message in a forum about [...]
Your Quarterly Newsletter: April 2021
Welcome Home! It’s hard to believe 2021 is soaring by so fast! We’ve been busy and we [...]
Julian is going to be the best baby!
Written By: Chelsea Castonguay Sarah Winner is a mother whose son was diagnosed with Klinefelter Syndrome while she was [...]
A Mother’s Intuition Led to Her Son’s Diagnosis
Written By: Chelsea Castonguay A couple of weeks ago I had the opportunity to sit down with Jaime [...]
The Voice of Jordan Truax
Written By: Chelsea Castonguay Jordan is a 29-year-old man living in Hughesville, Pennsylvania. While currently experiencing unemployment due [...]
The Voice of J.
Written By: Chelsea Castonguay J is a man in his late seventies years who resides in the UK. [...]
The Voice of Drew Gagnon
Written By: Chelsea Castonguay When he was a young boy, Drew knew what he wanted to do with [...]
The Voice of Alex H.
Written By: Chelsea Castonguay Alex is a 34-year-old man with Klinefelter Syndrome living in Centennial, Colorado. He’s a [...]
I was Googling every chance I got!
Written By: An Australian Mother I had to arrange my 13 weeks scan privately and Sydney UltraSound for [...]
Struggle to be a father due to an extra X chromosome
A man who only discovered he had Klinefelter syndrome when he and his wife failed to conceive naturally. [...]
Fears Are Changing Into a Community of Hope
The negatives, stereotypes, limitations, fears and the stigma. We asked the community to share the FAQ they receive [...]
Our Annual Letter for 2020
Dear Living With XXY Community, Let's go back to November 6th, 2019: Living with XXY was born, as [...]
XXYKindaGuy Sam Pierce
XXYKindaGuy: Klinefelter syndrome diagnosis a relief after childhood woes. February 16, 2018 The Courier News Letter Samuel Pierce [...]
After 6 Years of IVF Our Journey Began
Written by: A Mother in Australia Our journey began after 6 years of IVF. I had decided not [...]
Social Media
Our social media content is on the following platforms:
