Our Community
Inspirational stories from people all over the world who have been affected by Klinefelter syndrome 47 XXY. These are the voices of our community and their experiences are helping to make a bigger difference. Many of these posts have been published in magazines and newspapers.
Putting one foot in front of the other – Living with Klinefelter syndrome.
Forty one-year-old Chef Geoff Kruck was diagnosed with Klinefelter syndrome (KS) in 2012. KS is a genetic condition [...]
Baby Boy Born With Klinefelter XXY
Creating life is an incredibly intricate and personal thing. Before you even know the gender of your baby, [...]
Klinefelter Syndrome 47 XXY And Beyond: Nicholas Griwicki
In early January of 1994, we were planning for our first baby and we were so very excited. We [...]
XXY Teenager: 15 Year Old Sean And His Story
A story about 15-year-old XXY teenager Sean written by his mother Kristin. On July 29, 2002, I gave [...]
Jack’s Mom
This blog is created for families or expectant parents of sons living with Klinefelter Syndrome 47 XXY. By sharing our journey and experiences, we hope the content provides clarity, inspires hope, and brings a smile to many faces. We aren’t experts—we are parents just like you, figuring this out day-by-day, yet determined to give Jack the best launch to an amazing life ahead of him. We are excited to link arms with you, building this community together while providing a brighter future for our sons.
Klinefelter Syndrome Speech Therapy Tips
“But your son doesn’t sound like he needs speech therapy.” or “But he’s only 10 months old. What [...]
XXY Syndrome Diagnosis Guide
Our Vision Our capacity to love has expanded because of our son, Jack. Our vision with this [...]
Establishment of Care: Klinefelter Syndrome Guide
Jack was the name we picked out for our son before we even knew he was a boy. [...]
Klinefelter Prenatal Testing Guide
“You tested positive for Klinefelter Syndrome, therefore you’re expecting a boy,” stated the genetic counselor, sitting across from [...]
News & Updates
Marci Tatham “Jack’s Mom” Joins Living With XXY
Hey Everyone! My name is Marci Tatham and I’m pleased to announce that I’ve officially joined the Living With [...]
Living With XXY Newsletter: April 2020
Stanford BGAP Study Visit In late February, our team had the privilege of meeting the team [...]
Stanford’s Brain, Genes, and Puberty (BGAP) Study!
Researchers at Stanford University are looking for boys ages 8-13 with confirmed non-mosaic Klinefelter syndrome (47, XXY) to [...]
Loving With XXY
Love is what keeps our community together, and one way we can show our dearest ones living with [...]