This Story was written by a Mum that lives in Germany who has a son with Klinefelter syndrome. Using translation software, we do our best to bring you their story.
I am a Mum of a 24-year-old Klinefelter syndrome boy. He was diagnosed while I was pregnant. The only thing doctors did was send me to an endocrinological consultant since Klinefelter syndrome is under abortion law here in Germany. The only information I got was that the child will look normal and that there is not too much information about the development of these children. Some would have problems in school…some not. I should come with him from time to time for an endocrinological survey.
I wanted my baby! I felt pretty much alone! Max, at the moment, does not really want to know too much about Klinefelter syndrome. We have passed hard times. Sometimes I asked myself how to continue..being a single educating mother. The father negates up to today the diagnosis.
“Max is not a fan of groups and he is very faithful to friends.”
He has an excellent feeling for ball games such as Tennis, golf, basketball…it appears as if he would have done it always. But he is not using his talent. He is talented in painting and music. Unfortunately, up to now, he does not want to use this potential as a profession.
The school was horror. He only started reading by the age of 13. He is very good at visual learning. Our school system was not the best for him. He is very emotional and sensitive. He has an active sexual life. He dreams of big love, family, and children. He has a wonderful personality.
Finally, he also found his way job-wise. He is doing an apprenticeship in sales since he likes to deal with all kinds of people. He was always tired, inactive, and could not really concentrate. So I tried to find a way to support him.
For 5 years, he supports his body daily with highly concentrated micronutrition. His energy level is good. We changed our nutrition additionally. No white sugar, only good fats, reduction of carbohydrates. Fruit. Salads and good proteins. So up to now, we go without any testosterone shots or any chemical drugs.
“Can we blame Klinefelter syndrome for all of the difficulties?”
His testosterone level is right now at 4.9. Growing breast disappeared. Beard and body hair grow naturally. He develops an open personality within society.
Max is now 1.95 meters tall and has a thin build. I am so proud of him!
I hope our story gives hope and a solution to one or the other of you. In any case, the way we go up to now in supporting his body on whats the body needs could be an additional help in any case.
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