EARLY INTERVENTION PROGRAMS FOR XXY

Early intervention programs are federally mandated, but state regulated programs function to the standards that each individual state adapts. These birth to 36 months (3 years old) programs are essential for the Klinefelter syndrome (47 XXY) community but are not easily accessible. In the table below is a list of all 50 states, keywords from that state’s eligibility to use in advocating for services, and lastly the State’s Early Intervention Program and eligibility website.
As parents/guardians, we are the voice for the birth – 36 month XXY children, it is our responsibility to educate and advocate for services that will benefit XXY and other chromosome variances that have a high probability of having a developmental delay. If you have any questions or want to speak with someone about a parent advocating for therapy and services please feel free to email Carson@livingwithxxy.org. (Turn your phone sideways to access this list.)
UNITED STATES ELIGIBILITY STATE WEBSITE
Alabama

Infants and toddlers from birth to age 3 who either have a diagnosed physical or mental condition that has a high probability of resulting in developmental delay or are experiencing a developmental delay. 

Website Link

Alaska

A child who would be ‘at risk’ of having substantial developmental delays if early intervention services are not provided. In defining the ‘at risk’ population, included well know biological and environmental factors that can be indented and the place infants and toddlers ‘at risk’ for developmental delay. 

Website Link 1

Website Link 2

Arizona

Chromosomal abnormalities listed.

Website Link

Arkansas 

Infants and toddlers are determined eligible for early intervention under Part C if they have a medically diagnosed physical or mental condition which has a high probability of resulting in developmental delay. “Significant delay” is defined as a delay of 25% of the child’s chronological age or greater in one or more areas of development.

Website Link

California 

Infants and toddlers with a developmental delay in one or more of the following five areas: cognitive development; physical and motor development, including vision and hearing; communication development; social or emotional development; or adaptive development. Developmentally delayed infants and toddlers are those who are determined to have a significant difference between the expected level of development for their age and their current level of functioning. This determination shall be made by qualified personnel who are recognized by, or part of, a multidisciplinary team, including the parents. A significant difference is defined as a 33-percent delay in one or more developmental areas.

(2) Infants and toddlers with established risk conditions, who are infants and toddlers with conditions of known etiology or conditions with established harmful developmental consequences. 

Website Link

Colorado 

Yes, Klinefelter Syndrome is listed. 

Website Link

Connecticut 

Chromosomal abnormalities unspecified listed.

Website Link

Delaware 

Chromosomal duplications 

Website Link

Florida 

To be enrolled in Early Steps, your child must first be found eligible. Through our screening processes, we will be able to find out if your child has significant delays or an established medical condition that will likely result in a delay. 

Website Link

Georgia 

Have a diagnosed physical or mental condition that is known to result in a developmental delay. 

Website Link

Hawaii 

Chromosomal abnormalities.

Website Link
Idaho

Medical condition.

Website Link
Illinois

Chromosomal abnormalities listed – Most common, list not exclusive. XXY is not listed.

Website Link
Indiana

Chromosomal abnormalities or genetic disorders. 

Website Link
Iowa

Chromosomal abnormalities or genetic disorders. 

Website Link
Kansas

Chromosomal abnormalities or genetic disorders included but not limited to (XXY not listed).

Website Link
Kentucky

Established risk concern – A child may be eligible if he or she is diagnosed with a physical or mental condition likely to result in developmental delay.

Website Link
Louisiana

EarlySteps provides services to families with infants and toddlers aged birth to three years (36 months) who have a medical condition likely to result in a developmental delay, or who have developmental delays.

Website Link
Maine

Each site conducts Child Find, which is the process of identifying children with disabilities. Screenings and evaluations are provided to identify children who are eligible for services.

Website Link
Maryland

Has a diagnosed physical or mental condition that has a high probability of resulting in developmental delay.

Website Link
Massachusetts

NO! EXCEPTIONS listed: Klinefelter syndrome and Turner syndrome.

Website Link
Michigan

A diagnosed physical or mental condition that has a high probability of resulting in a developmental delay. Chromosomal abnormalities. 

Website Link
Minnesota

Yes, Klinefelter Syndrome is listed.

Website Link 1

Website Link 2

Mississippi

Chromosomal abnormalities or genetic disorders. 

Website Link
Missouri

Chromosomal abnormalities listed.

Website Link
Montana

Yes, Klinefelter Syndrome listed.

Website Link
Nebraska

Chromosomal abnormalities or genetic disorders. 

Website Link 1

Website Link 2

Nevada Your child has a diagnosed condition that is expected to lead to a developmental delay.  Website Link 1

Website Link 2

New Hampshire

Developmental delay, established condition, or atypical development. A child must be referred to Early Supports and Services and the referral can come from anyone, it does not have to come from your child’s physician.

Website Link
New Jersey Children are eligible who have a diagnosed physical or mental condition that has a high probability of resulting in developmental delay. The high probability diagnosis must be confirmed in a signed statement or report from a physician; advanced practice nurse; or licensed clinical psychologist in the child’s record including a statement that the diagnosed condition for the child has a high probability of developmental delay.  Website Link 1

Website Link 2

New Mexico

Genetic disorders with a high probability of delay, also generalized hypotonia and hypotonic patterns (see more in website link 1)

Website Link 1

Website Link 2

New York

Have a diagnosed physical or mental condition that has a high probability of developmental delay. Examples of diagnosed conditions with a high probability of developmental delay as set forth in Note 1 to 34 CFR §303.16 include chromosomal abnormalities, genetic or congenital disorders.

Website Link 1

Website Link 2

North Carolina

Genetic disorders with a high probability of delay.

Website Link 1

Website Link 2

North Dakota

Yes, Klinefelter Syndrome is listed.

Website Link
Ohio

Chromosomal conditions.

Website Link 1

Website Link 2

Oklahoma

Appendix O – automatic qualifiers? (see more in website link 1)

Website Link 1

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Website Link 3

Oregon

No, Oregon states that Sex Chromosome disorders do NOT associate with a high probability of significant developmental delays.

Website Link
Pennsylvania

Children from birth to age five who have special needs due to developmental delays and disabilities are eligible to receive Early Intervention services.

Website Link
Rhode Island

Chromosomal Disorders such as Down Syndrome, Trisomy 18, Trisomy 13, and chromosomal deletions and duplications.

Website Link
South Carolina

25% in two developmental areas or 40% in one area diagnosed physical or mental condition (verified by a physician) that as a high probability of resulting in developmental delay: and includes conditions such as chromosomal abnormalities.

Website Link
South Dakota

The diagnosed physical or mental condition shall be based on medical diagnoses, including Down’s syndrome and other chromosomal abnormalities.

Website Link
Tennessee

25% in two developmental areas or 40% in one area. Chromosome anomalies, other trisomies- Klinefelter Syndrome or XXY not listed.

Website Link
Texas

Yes, Klinefelter Syndrome is listed.

Website Link
Utah Yes, Klinefelter Syndrome is listed. Website Link
Vermont

Qualify through IDEA Part C- developmental delays or who have a diagnosed condition that has a high probability of resulting in a developmental delay.

Website Link
Virginia

25% age delay. Chromosomal abnormality: This includes any diagnosed abnormality of chromosome number or length.

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Washington

25% age delay. Chromosomal abnormalities associated with mental retardation; such as down syndrome.

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West Virginia

Chromosomal abnormalities- XXY or Klinefelter syndrome is not listed under the heading but 16 others are.

Website Link
Wisconsin

No chromosomal qualifiers. 25% age delay. Documented developmental delay or diagnosis with a high likelihood of developmental delay.

Website Link
Wyoming

No chromosomal qualifiers. 25% age delay. Documented developmental delay or diagnosis with a high likelihood of developmental delay.

Website Link