What Our Community Has Said

I had Klinefelters and it was a lot to handle. The more I have read and learned the more I have understood why I am the way I am. I'm very grateful for this page - it has helped me discover more and find more people like me.

I am the dad of an amazing 7 year old boy that is living with XXY. I learn so much listening to this podcast and it gives me insight and things to question. Thank you! And looking forward to more info.

Just wanted to thank you for producing your channel. You made one of the most stressful times of our lives so much less stressful. Our Dean was diagnosed with Klinefelter syndrome via amniocentesis. After my partner found your channel on YouTube, we watched about 10 videos that night and it made us feel very informed and at ease. Dean is 7 months old now and thriving - the most smiley, happy, social baby.

My son is born now and we have confirmed his Klinefelter diagnosis. I just wanted to tell you that your page saved my sons life. I can't believe Dr made me consider to abort him. He is a perfect 3 month old and I love him so much.

As a parent, I was overwhelmed after my son's diagnosis. This community gave me hope, knowledge, and a sense of peace we never had before.

Thanks so much for having this community. If it wasn't for you and all the amazing human beings I see there, I am not sure how I would have coped! I have a beautiful baby boy who is turning 1 soon, and I'm from Brazil.

I'm very thankful for Living with XXY. I would not know what advocacy looks like for Klinefelters if it wasn't for you. I think about it when I experience needle anxiety before my injection on Tuesdays. I'm just thankful to know others who experience similar things.

Thank you for sharing all of the stories about XXY! My son Theodore was diagnosed at birth and he is just about 19 months old now and is thriving! I am so happy to have found your page and the wealth of information has been incredibly helpful.

4 days ago I learned I'm highly likely infertile, have underdeveloped testicles and scheduled for chromosomes test. It is still very valuable for me to just listen to you guys talking honest about infertility, and the thought process around parenting.

I decided to put in XXY into Youtube and there you were, it was Amazing! I asked my son to watch with me and his eyes lit up maybe for the first time, he said "he has the same thing I do". Thank you for being you.

I always knew there was something different about me and I always questioned my physical appearance. Now I know the reason for that it's actually quite a relief. Already even after a day I'm starting to feel better about it.

Our little XXY boy officially here! I cannot thank you enough for this platform and resources! We are so prepared to give this little boy everything he needs. Thank you!

Your organization truly has made a difference in the lives of those with Klinefelter syndrome and their families! I have been following Livingwithxxy for a few months since my son was diagnosed with XXY and I do not know where I would be without you.

I'm a medical student, and my books tell me differently about people with Klinefelter syndrome. Thank you for doing this, and I hope the medical information will be updated, too.

I'm a medical student from Mexico learning about syndromes and treatments. It is great to see this type of video to learn more about the people going through them. Thank you for sharing your experience and helping to decrease the misconceptions about KS.

It feels nice to know that I'm not alone. Being able to surround yourself with other people who are just like you gives a sense of comfort. The togetherness of the XXY community is a family consistently helping others.

When I started to share my experience with infertility, layers of shame peeled off. I saw others living the same pain and felt connected. The power of community is real and genuinely can heal.

This account is the ENTIRE reason I carried to term. We now have the MOST beautiful, perfect 6 month old who is way ahead on his milestones. Thank you for helping so many families welcome incredible children that can change the world.

Thanks for your channel. Thank you for making me realize that there is nothing wrong with having a child with XXY. My wife is pregnant with a child with XXY, and I am no longer afraid and long to see my son come into the world.

I was diagnosed at age 18 with XXY, and I am 51 now. I have been taking injections ever since. I wish there were more help for Canadians as there are few doctors that know anything about Klinefelter syndrome.

XXY has become a huge part of my life. Without testosterone, I would have never lost 50 pounds, put on muscle, grown facial hair, and felt better about myself. XXY has blessed me with many more positives than negatives.