Insights from the XXY Community Blog
I Felt Like Something Was Missing.
At 21, Cesar’s Air Force dreams uncovered a surprise diagnosis: Klinefelter Syndrome. He turned adversity into confidence being XXY.
Read MoreTyler Indermill - I have forty-seven chromosomes! - Living with XXY Non-Profit
When Tyler Indermill was diagnosed with Klinefelter syndrome (XXY) at age 33, it changed his life—but not in the way he expected.
Read MoreFinding Your XXY Parenting Community
With time I’ve developed a community of Klinefelter syndrome moms. There’s such importance in finding your XXY parenting community.
Read MoreBen Redefining His Life At 28
Discover Ben’s inspiring journey living with Klinefelter Syndrome (XXY)—from childhood hearing loss and a surprise diagnosis to finding love, purpose, and a life filled with gratitude and adventure.
Read MoreMy Pregnancy With A Klinefelter Syndrome Boy
Google can be a scary place for new parents after doing prenatal testing (NIPT) and receiving A Klinefelter syndrome boy diagnosis.
Read MoreLiving With Klinefelter syndrome, I didn’t look like I had a disability
Discover Pete Cowley's inspiring journey of Living with Klinefelter syndrome. Pete shares his story of resilience and hope
Read MoreWhat if my NIPT is Positive
You receive a “Screen Positive” test result from your NIPT. This test result doesn’t necessarily mean that your baby has genetic condition.
Read MoreBorn With 48, XXYY
At 11 weeks pregnant my doctor asked if I wanted NIPT, our doctor told us that it was all suggestive that our son would be born with XXYY.
Read MoreTypes of Testosterone
Types of Testosterone from a guy who has been using TRT for more than 24 years. Check out our YouTube Channel Living With XXY.
Read MoreXXY Syndrome Diagnosis Guide
Our vision with this guide is to provide hope & encouragement to parents or expectant parents to boys just like Jack who are born with xxy syndrome.
Read MoreDiscovering Diagnosis Klinefelter Outline
Discovering Diagnosis Klinefelter Outline. I am a mom of a 17-year-old son with XXY. Since then, we’ve seen a lot of specialists
Read MoreCommon Questions About XXY
What are the most Common Questions asked About XXY? Here is an extensive list from the top doctors in the community.
Read MoreNew Chromosome Clinic Offers Hope
Kids aren’t likely to bully Connor Blundin. At 16 years old, he’s well over 6 feet tall and built like a lumberjack. His size is the result of being born with an extra X chromosome.
Read MoreKelsey Maffei: We all have a story to tell
Kelsey Maffei says by sharing his story about Klinefelter syndrome he can shape people's perceptions before they build conclusions from online infromation.
Read MoreRaising a son with Klinefelter syndrome
My husband and I have been together since we were teens and we had our first son Ayden when I was 21, he’s now 17, followed by Jacob, 13 and Amelia 10.
Read MoreJosh Lutz’s Klinefelter Syndrome Diagnosis
Josh received his diagnosis of XXY when trying to become a father. Initially, while it was a shock, Josh worked to be his best self.
Read MoreXXY Teenager - 15 Year Old Sean And His Story
When xxy teenager finally got his diagnosis, the neurologist was only able to tell him he would have severe learning disabled and unable to have children.
Read MoreXXY Male - Born Different by James Nimmo
The most important thing that I hope would be taken away from reading my story as an XXY male is to never give up, whatever the struggle is. You are brave.
Read MoreXXY Early Diagnosis Signs
One family looks back at the “soft signs” of XXY that were overlooked in early childhood. We found out about my son’s Klinefelter’s diagnosis when he was 9.
Read MoreTry Try Try
“TRY, TRY, TRY!” were the words that came out of Jack’s mouth as he attempted to run up a steep grass hill around 18 months of age.
Read More"This Might Be Me"
JT received his diagnosis of Klinefelter Syndrome in May of 2015, at age 28. JT “blanked” after the urologist delivered the news.
Read MoreThe Voice of Jordan Truax
Jordan is a 29-year-old man who is very open about his diagnosis, and ready to share about his life with Klinefelter Syndrome.
Read MoreThe Voice of J
J is a man in his late seventies who resides in the UK. As an older gentleman with Klinefelter Syndrome he is helping increase awareness.
Read MoreThe Voice of Drew Gagnon
When he was a young boy, Drew knew what he wanted to do with his life.
Read MoreThe Voice of Armin: Every diagnosis is different
Armin is a 29-year-old man with Klinefelter Syndrome living in New Zealand. Armin learned of his diagnosis as a young teenager.
Read MoreThe hope of fathering children snatched away at 20
When Fraser was diagnosed with Klinefelter Syndrome, it was possible he would never become a dad. Thanks to sperm donation, now a father to three boys.
Read MoreThe Diagnosis of an Extra X Chromosome Helped Mathew Find Himself
Mathew’s pediatrician began to suspect Klinefelter when Mathew was 15. Since he was very young, Mathew has struggled with speech and auditory processing.
Read MoreStanford’s Brain, Genes, and Puberty (BGAP) Study!
Researchers at Stanford University are looking for boys ages 8-13 with confirmed non-mosaic Klinefelter syndrome (47, XXY) to participate in a study exploring how puberty affects the brain and behavioral development in adolescent boys.
Read MorePutting one foot in front of the other - Living with Klinefelter syndrome
I found out the hard way I had Klinefelter syndrome. I married my wife and we started trying for a child. We tried for nineteen months with no success.
Read MorePuberty Hormones In Klinefelter Syndrome
Here we have the Extraordinary Kids Clinic, a specialty clinic for children with XXY and other X and Y variations. I will review some of the most common questions.
Read MoreMy son Joey is soon to be 28 years old, 14 years since he was diagnosed.
I am very proud of my son. He is kind, considerate and forever loyal to family and friends. He manages to always be positive and help others before himself.
Read MoreMy first time telling people my son has XXY
As people know my Thomas has been born with a syndrome. The syndrome Thomas has is Klinefelters. His syndrome is also called XXY. Meaning my boy has an extra X chromosome.
Read MoreMany men have an extra X chromosome - but are rarely diagnosed.
“Most men are only diagnosed when they struggle to conceive,” Yap says. “This will be when they are in their 30s or older.
Read MoreLoving With XXY
Love is what keeps our community together, and one way we can show our dearest ones living with XXY, just how much we care for them.
Read MoreLearning About Our Son's XXY Diagnosis
When I got pregnant, my husband and I debated about finding out the sex of our baby. We decided to skip genetic testing, and wait to be surprised when the baby was born. However,
Read MoreKlinefelter Syndrome Speech Therapy Tips
This journey isn’t always easy and certainly doesn’t come with a step-by-step manual. Our guide is designed to help with Klinefelter syndrome speech therapy
Read MoreKlinefelter Syndrome Genotype
We became aware of the possibility that our son had Klinefelter syndrome genotype through a NIPT test (non-invasive prenatal test) I had done at 8 weeks.
Read MoreKlinefelter Syndrome: Building A Community With Ryan Bregante.
An article about Founder and President of Living With XXY, Ryan Bregante. This article is about Ryan's vision for the future of XXY.
Read MoreKlinefelter Prenatal Testing Guide
The Klinefelter prenatal testing guide for expectant mothers to help you in next steps after undergoing genetic testing in the first trimester of pregnancy.
Read MoreKlinefelter Pregnancy Termination Story
Devra shared her story of learning about Declan’s diagnosis of 47, XXY, and how they were offered Klinefelter pregnancy termination.
Read MoreKlinefelter Diagnosis - Stefan Schwarz
I had learning, social, anger, and behavioral issues. But they couldn’t put their finger on it until my XY/XXY Klinefelter diagnosis occurred.
Read MoreI Feel Alone In The UK With My Son’s Diagnosis
A year after their son's diagnosis, they traveled to Italy for a follow-up appointment since the UK did nothing to help with their young son.
Read MoreHigh school with XXY
How did I manage to get through High School with XXY? Sophomore year English was one of my hardest classes, I remember taking notes was extremely difficult.
Read MoreFree Forest School - The benefits of free play in nature
Free Forest School gives boys with Klinefelter syndrome free play in nature. It is not leisure time; it’s an essential investment in our children’s health.
Read MoreFinding Resources For Klinefelter's In Rural Areas
When our son was born, my husband and I considered moving to a more urban area for the sake of gaining access to more Klinefelter's resources.
Read MoreFinding my "X"
My name is Gregory Duncan, I am 30 years old. This is my story about being diagnosed with Klinefelter syndrome and finding my "X".
Read MoreFears Are Changing Into a Community of Hope
Have you ever felt like no one truly understands what living with XXY means or feels like? Only view your son to what the internet suggests?
Read MoreFather Learns of Son’s XXY
Father Learns of Son’s XXY. Seeing the joy on my wife’s face was priceless. We were both established adults and were ready to handle this.
Read MoreEstablishment of Care - Klinefelter Syndrome Guide
We hope this Establishment of Care: Klinefelter Syndrome Guide will encourage families to customize their own approach to establishing their son’s plan.
Read MoreColton’s XXXtraordinary Cause
At nine months old, Colton was diagnosed with 48XXXY. Colton’s XXXtraordinary Cause is for every child that has been diagnosed with a rare syndrome.
Read MoreBaby Boy Born With Klinefelter XXY
Jaclyn Childers, A Pregnant mother story about NIPT testing and how they found out their son had Klinefelter XXY, syndrome.
Read MoreAn XXY Diagnosis - The Voice of Luke Breard
This is the story of Luke's XXY diagnosis, and how he became an adoptive father to two boys, while living with XXY.
Read MoreAfter 6 Years of IVF Our Journey Began
In December we had a CVS test done as I was 43 and my obstetrician recommended it. Days passed and we were anxiously awaiting the results.
Read MoreA New Zealand mother and her XXY Kid
Are you mum?, Have just been told about your son being an XXY kid? I just want to show you that life isn’t bad after a Klinefelter syndrome diagnosis.
Read MoreA few days later I canceled our XXY abortion
Diagnosed with XXY and a doctor said “mental retardation, severe delays in development… but she could help me have and XXY abortion without any difficulty”.
Read More47 XXY Life WORTH Living
The genetic counselor cut straight to the chase and informed me that I tested positive for a chromosomal abnormality 47 XXY that was only present in males.
Read MoreLiving With XXY October Newsletter
It's better late than never, and our October newsletter is a special issue of all the fantastic things happening this month.
Read MoreLiving With XXY December Newsletter
Thank you all for your continued support as I take time to focus on self-care, during an especially busy time of year.
Read MoreThe Voice of Matthew Roseworne
Matthew Roseworne is 39 years old and lives in Gulgong, New South Wales, Australia He shares about life with Klinefelter Syndrome is like.
Read MoreHello, I Am Brian Winters
I’m Brian a 36 years old male born with Klinefelter Syndrome. I wasn't diagnosed till my adult years. Let’s talk about mental health.
Read MoreA Mother’s Journey - The Unknowns of XXY
While pregnant with her first child, Nina learned that her son might have Klinefelter syndrome. She had never heard of it before.
Read MorePerhaps The NIPT Was Wrong
Haddie and her husband met with a maternal-fetal medicine specialist, but the appointment was jarring and disappointing. Their son has XXY.
Read MoreWyatt Will Move Mountains
I've hesitated to share this publicly for the past year because I didn't want our son to be looked at or treated differently, & I wanted him to be the one to decide if & when to share it.
Read MoreAn Ill-Informed Provider
Beth was told her son with XXY would be “mentally retarded” and to see a genetic counselor so they could discuss termination options.
Read MoreOur Doctor Suggested Termination For XXY
Meet the Jenkins-Nardelli family. Here is the story of their remarkable little XXY boy Preston, who will turn 5 in February!
Read MoreOur Beautiful Rainbow Baby
Our rainbow baby's story with XXY. Our Genetic Counselor "I know you said let's not discuss abortion, but maybe you need to think about it."
Read MoreSharing My Diagnosis With The World
Two years ago today, I was diagnosed with Klinefelters Syndrome or XXY. Most of you probably have no idea what this is.
Read MoreMale Infertility & Pursuing Parenthood
Jared Pike is helping raise awareness for Male Infertility & Pursuing Parenthood. Sharing his succesfull adoption story is essential.
Read MoreThe Journey To Baby Indermill
After more than a year of trying to conceive, Tyler Indermill and his wife, Tasia, underwent testing. Tyler then learned he was infertile.
Read MoreUnexpected Klinefelter Pregnancy Diagnosis
Soon-to-be mother Femke Weidema had an unexpected Klinefelter pregnancy diagnosis with her son Ender when they met with her doctors.
Read MoreSharing My Klinefelter Diagnosis Worldwide
When applying for the Air Force, the doctor noticed something odd during the medical/physical exam. I found out I had Klinefelter syndrome.
Read MoreMichael Palumbo's Klinefelter Adult Diagnosis
Michael Palumbo was born in Toronto, Canada. Now 35, Michael was 32 years old when he learned about his Klinefelter adult diagnosis.
Read MoreLois Ivanoff's Klinefelter Mother Termination
Lois' doctor suggested an amniocentesis to ensure everything was ok with the baby. She was offered a Klinefelter mother termination
Read MoreUnderstanding Adoption For XXY Men
Men with XXY find out they are infertile while trying to have kids. Understanding adoption i one of the many ways to build a family.
Read MoreKlinefelter Pregnancy Abortion
Heather's son Tyler, was diagnosed with Klinefelter syndrome. She shared her story of being offered a Klinefelter pregnancy abortion.
Read MoreA Mother's XXY NIPT Diagnosis
I wanted to write my story. My point of view of being a mom to a now toddler with Klinefelter Syndrome.
Read MoreAmnio Klinefelter Diagnosis
At 20 weeks, Beverly received an amniocentesis. They were surprised by the results of an amnio Klinefelter diagnosis.
Read MoreKlinefelter Diagnosis Stress
Kasia's doctor required early prenatal testing. The results for Kasia and her husband resulted in Klinefelter diagnosis stress.
Read MoreWhat to expect when you’re expecting an extra X or Y chromosome
What to expect when you’re expecting an extra X or Y chromosome.
Read More48 XXXY - The Voice Of Aron Capon
Aron is a 41-year-old man living with a variant of Klinefelter Syndrome 48 XXXY. Aron resides in Gabriola Island, BC with his wife Nikki.
Read MoreKlinefelter Syndrome And Autism
Annette Flannery lives in Maryland with her husband and their son, Ronan. Ronan is a fantastic boy with Klinefelter syndrome and autism.
Read MoreEarly Prenatal Klinefelter Diagnosis
At the age of 35, Nina found out she was pregnant. Five days later, Nina’s phone rang . She received a prenatal Klinefelter diagnosis.
Read MoreInfant Klinefelter Diagnosis
The pregnancy was a surprise. As Amy was 39, her doctor suggested a NIPT. The couple was surprised with an infant Klinefelter diagnosis.
Read MoreLife with KS - The voice of Daniel Hellinger
Daniel Hellinger is a 30-year-old man living with mosaic Klinefelter Syndrome/KS. He resides in Seattle, where he was also raised.
Read MoreKlinefelter Man Diagnosis
Dan shared his Klinefelter man diagnosis, as he received the news later in life. He lives with 47, XXY, or Klinefelter syndrome.
Read MoreMeet Ryan Bregante of Living With XXY
In 1985, while my mother was pregnant with me, I was diagnosed with 47, XXY, or Klinefelter syndrome. When I was 9, I was told about XXY.
Read MoreA Surprise Klinefelter Pregnancy
Anne and Mike weren't expecting a pregnancy after their daughter was born. They had a surprise Klinefelter pregnancy with their son Brent.
Read MoreA Positive 48 XXXY NIPT
When I was pregnant with Wyatt, I opted to do NIPT. When he was two weeks old, we were informed he had Klinefelter syndrome, 48 XXXY NIPT.
Read MoreYoung Adult Klinefelter Life Story
Jason noticed unexpected body changes. Despite an active lifestyle he began developing breast tissue as young adult Klinefelter diagnosis.
Read MoreAn Unexpected Klinefelter Diagnosis
When a nurse noticed something during a routine exam, Max's family was shocked by an unexpected Klinefelter diagnosis.
Read MoreA Klinefelter Abortion
When Ashley found out she was pregnant, she couldn’t wait to learn more about her baby. Her doctor suggested a Klinefelter abortion.
Read MoreTeenage Klinefelter diagnosis
15-year-old Cassiel, who received a teenage Klinefelter diagnosis two years ago, and what it's like living with 47, XXY.
Read MoreLiving With Fear “And” XXY
Tyler and his wife learn their unborn son has 47, XXY. Well, it was a BOY! And then the “but”… but he has Klinefelter syndrome.
Read MoreA doctor's son with Klinefelter syndrome
A Doctor's son with Klinefelter syndrome. Emily who was 26 years old after experiencing a miscarriage learned her son may have 47 XXY.
Read More47XXY Adoption Story: George Tomkin's
In 2015, George was told he would be unable to have children. He never imagined his journey would include 47XXY adoption.
Read MoreKlinefelter Teen Diagnosis
The Keller family was surprised by a Klinefelter teen diagnosis when Matthew was diagnosed in Texas at age 17.
Read MorePrenatal Diagnosis Klinefelter Baby
Ali and her husband did not expect a prenatal diagnosis Klinefelter baby. This is their story of acceptance.
Read MoreSam's story
Hi there, I’m Sam. I’m 27 and I got diagnosed with Klinefelter Syndrome at age 23, but those 23 years of not knowing were somewhat uncomfortable.
Read MoreKlinefelter Syndrome Male - Joey Schiffman
Joey Schiffman is a 29-year-old man, working with the cars he dreamt of, while also living as a Klinefelter syndrome male
Read MoreLiving With XXY 2021 Annual Report
Dear Community, This year was the first year building an annual report; it was extremely challenging and frustrating.
Read MoreThe Voice of Richard Martinez
Richard Martinez is living with Klinefelter syndrome. This is his story about what it was like to like to discover he had KS later in life.
Read MoreThe Voice of Ben Henrickson
Ben Henrickson is 22 and resides in Chapel Hill, North Carolina. Ben was in fifth grade when he noticed signs of gynecomastia.
Read MoreUsing Donor Sperm - Greg and Katie Duncan
Katie’s OB-GYN ordered a sperm test for Greg, and the results left the couple stunned. The first test showed Greg had zero viable sperm.
Read MoreThe Road To Adoption - Matt Troxler
When Matt Troxler was in kindergarten, he received an unexpected diagnosis. His teacher noticed some symptoms, and encouraged his parents to get Matt tested.
Read MoreMosaic Klinefelter Syndrome: Stefan Schwarz
An avid foodie with Mosaic Klinefelter syndrome, 51-year-old Stefan Schwarz is living a healthy, happy, full life.
Read MoreShe hopes it doesn't happen to other mothers
After her son's diagnosis of Klinefelter syndrome was delivered bluntly, Sophia hopes it doesn't happen to other mothers .
Read MoreNavigating the World With Klinefelter Syndrome - The Voice of Andrew Curry
Andrew Curry is an Eagle Scout. He’s an avid gamer and an excellent swimmer. Andrew is also navigating the world with Klinefelter syndrome.
Read MoreFinding community with Living with XXY
In case we haven’t met yet, I’m Chelsea, the writing director for Living With XXY. Our son Noah lives with 47, XXY, or Klinefelter syndrome.
Read MoreThe Voice of Ken Widelski
Ken Widelski believes setting goals and consistency is the key to success; when fitness training, and living with Klinefelter syndrome.
Read MoreA Surprise Diagnosis
Jacqueline Lightcap is a mother raising a son with Klinefelter syndrome. This is her story of receiving an unexpected childhood diagnosis.
Read MoreLacy and Dan's Prenatal Diagnosis Story
Dan and Lacy are parents to a baby boy with Klinefelter syndrome. They agreed to NIPT testing to learn the sex of their baby.
Read MoreThe Voice of Nate Biklen
Nate Biklen is a 41-year-old man living with Klinefelter syndrome. Nate enjoys a variety of hobbies, spending time withfamily and family.
Read MoreThe Voice of Geoff Kruck
Geoff Kruck is 43 and living with Klinefelter syndrome. He shares his story about his wife Beth, their dog living near Melbourne, Australia.
Read MoreThe Voice of Dave Ruckle
Dave Ruckle is a 48-year-old man living with Klinefelter syndrome.
Read MoreThe Voice of Porter Declan
Porter Declan is a 29-year-old man living with Klinefelter Syndrome/47 XXY. Despite rough patches in his life he continues to drive forward.
Read MoreWhy Telling Your Story Matters
He’s smart as a whip, photographic memory, and is ready to strike a pose for a photo. Noah also lives with 47, XXY, or Klinefelter syndrome.
Read MoreEverything is going to be fine - Leah's story
Following her doctor’s recommendation, Leah participated in NIPT testing and learned her unborn son had Klinefelter syndrome, or 47, XXY.
Read MoreFrom Termination to Life - Jenn's story
Stories of parents who were advised to terminate their prenatally diagnosed 47, XXY pregnancy and why they chose to go forward.
Read MoreThe Voice of Seamus Denison
Seamus Denison shared his story of growing up in Australia without knowledge of his diagnosis and learning about XXY as an adult.
Read MoreThe Voice of Jake Gray
Jake Gray has seen and done things at twenty-six that many of us could only dream of and he’s doing it while living with Klinefelter syndrome.
Read MoreKlinefelter syndrome - You are worthy
Having Klinefelter syndrome doesn't make you any less worthy. Like autism, Klinefelter syndrome is a spectrum disorder.
Read MoreLiving With XXY Response to 1,000-Year-Old Remains May Be Nonbinary
Living With XXY NonProfit 501(c)(3) Charitable Organization response to recent news about 1000 year old remains.
Read More“Your son has Klinefelter’s Syndrome.”
We had absolutely no idea that our sons learning difficulties, his stature, and thin physique were indicative of having Klinefelter 47 XXY.
Read MoreThey told their son "You’re an X-Man!"
Noelle Davidson is the mother of a boy diagnosed in utero with Klinefelter Syndrome. Her pregnancy was considered geriatric.
Read MoreBlood work indicated “something was wrong"
Andrea Holdren is the mother of 3-year-old Connor, who lives with Klinefelter Syndrome and Autism. Andrea shares her story to help others.
Read MoreA German Klinefelter Story
I am a Mum of a 24-year-old Klinefelter syndrome boy. He was diagnosed while I was pregnant. I was sent to an endocrinologist consultant.
Read MoreThe People Behind Colton’s XXXtraodinarY Cause
Boys with 48 xxxy often face physical struggles due to low muscle tone, complications with language and speech, and developmental issues.
Read MoreXYY A Missed Diagnosis
I think it is a journey that many X Y variant moms could have been through, so I feel like I owe it to my son and other moms to write it.
Read MoreXXY Males – Klinefelter Syndrome
Klinefelter affects only males. Instead of having the usual XY chromosome pattern of most males, boys are born with an extra X chromosome.
Read MoreThe Havoc of an Undetected Extra Chromosome
Sam’s parents began to suspect something was not quite right when at age 2, their son was not walking and he said nothing they understood.
Read MoreMatthew was diagnosed with XXY at 14
I credit Matthew's pediatrician who thought that his enlarged breast tissue was something more than just puberty.
Read MoreGraham's Klinefelter Syndrome Story
As a young child he was involved in Early Intervention following his diagnosis at age 2 of Klinefelter’s (47XXY).
Read MoreA human-friendly logo for Klinefelter Syndrome Awareness
I had to create a logo for Living with XXY. Their mission is to spread positivity and awareness around Klinefelter Syndrome.
Read MoreMy Son’s Klinefelter Story (Spanish)
When the gynecologist phoned me to give me the results, he told me the karyotype had left XXY, Klinfelter syndrome. I was frozen with worry.
Read MoreKlinefelter’s Syndrome Story
She said: Your son has Klinefelter’s Syndrome. We had no idea whaT it meant or if our baby was going to be okay, I started shaking from fear.
Read MoreWhat To Say When Someone Tells You About Their Son’s XXY Diagnosis
What tell someone about their son’s Klinefelter Syndrome diagnosis can be challenging. Here are some tips to support loved ones .
Read MoreThe Voice Of Dylan Mathis
Dylan Mathis is a man living with Klinefelter Syndrome, or 47,XXY. Dylan works as a residential service tech for Xfinity. Dylan has a fiance.
Read MoreXXY Syndrome Blood Test
Two weeks later, the results came back from the lab. “You’re not going to believe this one,” she recalled Bean ‘A punch in the gut’.
Read MoreYears of misdiagnoses, Lawrence teen found to have little-known disorder.
“My child has Klinefelter Syndrome, a genetic condition in which boys have an extra ‘X’ chromosome — 47, XXY,” the cards say.
Read More47 XXY Syndrome Awareness
Because of my age, I had to have an amniocentesis. The results included a thin, little book of information I never heard of 47 XXY syndrome.
Read MoreChanging The Stigma - A New Perspective
When surrounded by nothing but negativity and stigmas, how do you change that information? How do you bring hope to XXY famlies in your shoes?
Read MoreXXY Baby is Born
This is to the mothers who are really struggling and not understanding what it means to have a baby with Klinefelter syndrome or XXY.
Read MoreKlinefelter Educations
There are people all over the world who have Klinefelter syndrome. Klinefelter Educations list helps people see what careers people have.
Read MoreOBGYN Diagnosed Mosaic 47 xxy
I was excited to tell my husband he was going to be a dad then, my OBGYN said "don’t freak out, but the test shows that your baby has XXY."
Read MoreOur Genetics Counselor Said Most People Terminate Their XXY Pregnancy
Karla is a mother of a man with Klinefelter Syndrome. She shared what it was like to have a prenatal diagnosis of 47 XXY.
Read MoreKlinefelter Confidence
Did you know that men with Klinefelter syndrome fall under the lack of Klinefelter confidence and believing in themselves?
Read MoreThe Voice Of Russell Martin
Russell Martin lives with mosaic Klinefelter Syndrome. The diagnosis was missed when he was 13, and wasn’t confirmed until 30 years later.
Read MoreMexican Mother’s 47 XXY Story
Our doctor called with results of the amniocentesis. The news was a shock, our son had XXY, the gynecologist did not know much about it.
Read MoreThe Voice of Gerald Mynard
Gerald Mynaard, a social media developer and youth leader shares what his life with Klinefelter Syndrome is like living in St. George, Utah.
Read MoreA Story about Kyle born with XXY
With Kyle’s initial diagnosis I was extremely upset. It was a lot to take in and I had never heard of Klinefelter Syndrome before.
Read MoreSex Chromosome Disorders
“Emma loves school and her teachers,” says Tori St. Germain. “But she struggles with reading and math. Socialization is hard for her.
Read MoreThe Voice of Charles Plaisance
Charles Plaisance is a man living with Klinefelter Syndrome in the Midwest. He’s married, and has three children of his own.
Read MoreOptimistic XXY Mindset
People often ask how I live with the mindset to be an optimistic XXY knowing that I have Klinefelter Syndrome and XXY.
Read MoreMelissa felt “pretty hysterical” when given the news
Melissa, the mother of a toddler with Klinefelter Syndrome, shares what it’s like to raise a child with 47XXY in New York State.
Read MoreSpanish Mother’s 47 XXY Story
I’m 37 years old and I’m pregnant with twins. Last week I had the amniocentesis test, and we discovered that of the two babies being 47 XXY.
Read MoreMom Vs. Teacher
A few details from a “Teacher that is a Mom” regarding my son’s academics and how it relates to Klinefelter Syndrome
Read MoreYour Quarterly Newsletter: April 2021
Welcome Home! It’s hard to believe 2021 is soaring by so fast! We’ve been busy and we know you have too. That is why we’re so glad you’ve subscribed to stay up to date with our current projects, accomplishments, meetups, and more.
Read MoreJulian is going to be the best baby!
Sarah Winner is a mother whose son was diagnosed with Klinefelter Syndrome while she was pregnant. To help raise awareness this is her story.
Read MoreA Mother's Intuition Led to Her Son's Diagnosis
Luke continued to be extremely fatigued, lagged behind his peers both academically, and physically, the Greenes pushed for genetic testing.
Read MoreThe Voice of Alex H.
Alex is a 34-year-old man with Klinefelter Syndrome. He’s a gregarious, self-described ginger, with a bright smile, and infectious laugh.
Read MoreI was Googling every chance I got!
XXY can’t be “cured”, but on the other hand, it isn’t something that needs to be managed every minute or even every day.
Read MoreOur Annual Letter for 2020
In the midst of a global pandemic, our community came together in the toughest of times and offer support to one another all across the world
Read MoreFacing Uncertainty
Daniel’s speech was the first red flag, years later unable to talk Paul & I decided that we needed to see our paediatrician to find out why.
Read MoreStruggle to be a father due to an extra X chromosome
A man who only discovered he had Klinefelter syndrome when he and his wife failed to conceive naturally. Challenging times ahead.
Read MoreMarathon Baby by Cedars-Sinai Magazine
Fueled by the power of knowledge and unparalleled access to supportive resources, Matt and Marci Tatham take their young son’s genetic disorder in stride.
Read MoreGiving Tuesday 2019
Our very first Giving Tuesday Today is #GivingTuesday and it is Living with XXY's first.
Read MoreXXYKindaGuy Sam Pierce
Samuel lacked hair growth, muscle mass, had learning difficulties, and at the age of 23 his “sex drive decided to die”.
Read More
