Group of men with XXY
About Living With XXY

Living With XXY's Mission & Vision

Living with XXY is changing the way the world views Klinefelter syndrome/47, XXY. Focusing on community, awareness, and positive traits. We provide a platform for those with Klinefelter syndrome/ 47 XXY to understand they are not alone. While spreading much-needed awareness worldwide, we also offer a safe space for individuals to share their stories and create lifelong friendships.

We continue to focus on our community’s successes and positive traits while understanding the challenges. Providing helpful resources & sharing real-life stories across the spectrum, we inspire individuals and families to reach and exceed their full potential while maximizing their quality of life.

The stigmas of the past will not take away the voices of the future. Ryan Bregante Founder of Living With XXY quotes
Our Community

Real People in Our Community

  • Ryan Bregante
    Board Member Ryan Bregante President & Founder

    "The stigmas of the past will not take away the voices of the future." My parents found out in 1985 via amnio that I was going to be born with Klinefelter syndrome (non-mosaic 47 XXY). I was told at 9 years old. The first time I googled Klinefelter syndrome was in June of 2017, a few months later I started the "Living with XXY" Youtube channel. In November of 2019 we became an official NonProfit. I currently live in San Diego, CA. Before Living With XXY, I was a Chef for 10 years, graduating from the CIA in 2007. I have had multiple careers since, including a freelance action sports photographer. I love spending time with my family, snowboarding, camping, and hiking.

  • Andy Angstrom
    Board Member Andy Angstrom BeeKeeper and Treasure

    Andy Angstrom is a dedicated beekeeper based in the lush landscapes of Oregon. With a deep passion for pollinators and sustainable agriculture, Andy has spent over 40 years nurturing honeybee colonies and advocating for their critical role in ecosystems. When he's not tending to his hives, Andy enjoys salmon fishing in the custom boat he built, going hunting, crabbing, playing cards, and getting involved with his church. Since Andy's diagnosis, he has been an advocate and a mentor in the community helping young men aspire to owning their businesses.

  • Shanlee Davis, MD, PHD
    Medical Advisor Shanlee Davis, MD, PHD Pediatric Endocrinology
    email

    I am proud to be the medical advisor for Living with XXY and to partner with this wonderful non-profit organization. With expertise as a pediatric endocrinologist and clinical-translational researcher, I have dedicated my career to bettering clinical care and outcomes for individuals with X&Y chromosome variations, predominately XXY. I have provided clinical care to hundreds of boys and young men with XXY alongside our amazing interdisciplinary team. I am motivated to answer questions that are important to my patients and their families through pragmatic research as well as mentoring the next generation of clinicians and scientists that will be able to extend these efforts beyond my reach. My purpose is that my work will have broad-reaching effects, and ultimately make a difference in the lives of individuals with XXY that I may never meet.

  • Tyler Indermill
    Advocate Tyler Indermill California

    Hello, I am Tyler, and I'm from California. I have 47 chromosomes! I am a musician, but not by trade. Usually, you can find me on a unique adventure somewhere in the world. I've been to 30 different countries and counting. One of my many hobbies is fermentation. I ferment things like sauerkraut, garlic honey, kombucha, and mead. I enjoy being outdoors on a hike or jumping off a waterfall. Most of my time currently in 2023 goes to house projects and caring for my newborn with my lovely wife. I have a daughter, and we used donor sperm. I love learning new things and always strive to be better tomorrow than I was.

  • Gareth Landy
    Advocate Gareth Landy Ireland

    Hello everyone, my name is Gareth Landy, and I live in Ireland. I was diagnosed as XXY when I was 37 years old when trying to start a family with my wife, Anna. We now have the most amazing donor-conceived twins who take up pretty much all of our time and focus :) My background is in video production and photography, and until recently, I ran a very successful wedding film business. I like to take on significant challenges, so I cycled the length of Ireland to raise money for children with cancer and have run the Dublin Marathon three times. These days I love to take images of my children with my trusty prime lens, give tips to tourists on things to see in Ireland, and lastly, do some running.

  • Jared Pike
    Advocate Jared Pike Arizona

    Getting diagnosed with Klinefelter Syndrome as an adult changed my life and answered many personal questions for me. As a foster/adoptive father and special education teacher, I understand the importance of being able to navigate systems that are often confusing and overwhelming. Advocating for parents and kids, especially those with XXY extends my daily routine. I love gardening, cooking, baking, and exploring many other skills, my ADHD finds useful. My wife and I have been married for 15 years. Our family motto is "Work hard, play harder."

  • Taylor Berstein
    Advocate Taylor Berstein Nashville, TN

    Hi, It's me, Taylor; I am from Denver, CO, though I live with a roommate in Nashville, TN. I am 26 years old (2023) and was diagnosed with XXY in utero. I started my own business as a chauffeur when I moved in 2019. The best part about my job is I work when I want, and I love meeting people from all over the world. I also work as a Nashville ambassador. I enjoy hiking to waterfalls on my days off and listening to live music.

  • Geoff Kruck
    Advocate Geoff Kruck Victoria, Australia
    email

    G'day, I'm Geoff and I live in Victoria, Australia. My wife and I have been married for 12 years and we have a kind hearted 9yo Border Collie named Kargi – which means Brother in Aboriginal. I'm a chef by trade and last year started my own business: Krucky's Fine Foods. I love to create delicious chutneys and jams, as well as Granola and a range of gourmet crackers. I also run a successful Sourdough Bread business from home and am expanding into an 100yo wood fired bakery over the next few months. Part of my dream for the business is to be able to mentor and train others in my craft.

  • Miguel F
    Miguel F

    I love to ride my bike and now I am riding my big brother's bike. I love my 2 dogs too.

  • Caio
    Caio

    I am a very active boy and I love Art, I am from Brazil

  • Nathan
    Nathan

    He loves going to the park, watching football siblings, and of course, smiling.

  • Andre L
    Andre L

    My passion is motorcycling during the summer and writing, painting, mechanics and metalworking during the offseason. 47-XXY gives me the opportunity to expand on spatial thinking which helps a lot.

  • Kyle M
    Kyle M

    My name is Kyle and one of my favorite things to do is spend time with my mom.

  • Andrew H
    Andrew H

    I love to watch NASCAR and sometimes go to a race. I love Fire trucks. I love to dig.

  • Ethan P
    Ethan P

    I love to go backpacking in the mountains and to drive cars. I also love to do photography of nature and cars.

  • Taaven H
    Taaven H

    I enjoy Hiking, Flying and playing paintball.

  • Mike C
    Mike C

    Hiking and the great mountain west is my playground. Love the challenges of summiting peaks. This year was a short season due to last year's snowfall. So I only got 3 out of 5 peaks conquered.

  • Liam
    Liam

    Hi my name is Liam I am 3 years old I was dx at 22 months. I also have type 1 diabetes. I love watching Blippi and working with my daddy in the yard. I love all things construction

  • Leo
    Leo

    He likes playing outside, building with Legos and other toys, and books with flaps.

  • Luke
    Luke

    Hobbies: sailing, mt biking, boating, cooking, camping, teaching sports.

  • William
    William

    He loves to play with trucks, and loves to be at the park with his friends.

  • Kevin G
    Kevin G

    The happiest day of my life was my wedding in 2013 with my wife Colleen. I love animals and working with my hands. I do woodworking as a hobby.

  • Daniel M
    Daniel M

    I'm a very active boy, my favorites hobbies are: play video games, cats, play soccer, travel, play with my siblings, dance and I'm from Brazil.

  • Aaron C
    Aaron C

    I love fishing, working with animals. I enjoy playing video games.

  • Chase
    Chase

    Enjoys singing. And playing music . can play 55 plus instruments.

  • Brad P
    Brad P

    I like to go to the gym after work socializes with friends be an active member of the xxy Klinefelter group.

  • Anthony B
    Anthony B

    Here I am having a picnic with Kira in the backyard I'm feeding her a fruit pouch. I may not be smiling from ear to ear in this photo but I'm proud beyond belief that this little angel is mine.

  • Jeremy H
    Jeremy H

    I just got back into fishing and I absolutely love it. Also working out and cruising in my car. I was also fortunate to be able through IVF treatments have a beautiful daughter with my wife.

  • Aaron W
    Aaron W

    This is Aaron, 16yrs old, He loves playing soccer. He plays on a special needs team and loves helping the other players out. I see for his future of being a big helper to kids with special needs. He will always have a ball with him and he names them. Franklin is this balls name. Lol

  • Brett J
    Brett J

    I enjoy hanging with my unoin brothers, seeing my family, walking the dog, drawing

  • Alden
    Alden

    I love Legos, Roblox and playing Fortnite. Pizza is my favorite food. Laser tag and jumping on the trampoline are really fun too.

  • Bill
    Bill

    I like water sports and mountain sports. They make me feel like I am flying" Bill age 14, UK

  • Sebastian
    Sebastian

    Sebastian is 16 months old and is a perfectly normal toddler. He spends his days getting into his sibling's things, making messes, and being adorable 24/7. He loves to take walks and play outside.

  • Connor
    Connor

    Here is a photo of Connor eating spaghetti (which is a huge accomplishment in itself since he never eats!). This photo shows his silliness and desire to make us laugh at all times.

  • Noah
    Noah

    I love playing at the beach, making slime and walking my puppy.

  • Dave G
    Dave G

    I love all types of trains and train stations.

  • Aidan W
    Aidan W

    I love to rock climb, camp, fishing and ride my ATV in the desert. I enjoy collecting all types of antiques like pins, records, old cards, and stickers.

  • Andrew D
    Andrew D

    I love hiking, shooting, kayaking, go-karts, skydiving, paintball, and camping.

Get Started

Stay Informed With Every Update

Sign up to receive our latest stories, educational resources, and opportunities to connect with others in the XXY community.

Join The Community Today
Group of people