Living With XXY Accomplishments (More coming soon)
Public Speaking Events:
Fox News Wisconsin
DNA Today Podcast
Speaker at Southern California Genetic Counseling Conference
American College of Medical Genetics and Genomics Conference
Hunter College
New York University
Long Island University
Brandis University
Keane University
Coordinated Large Community Meetups:
Atlanta, GA – Lake Burton, GA – Greensboro, NC
Orlando, FL – NYC, NY – Newark, NJ
Twin Cities, MN – Philadelphia, PA – Wausau, WI
Milwaukee, WI – Chicago, IL – Denver, CO
San Diego, CA – Boston, MA – Wroclaw, Poland
Brisbane, AUS – Sydney, AUS – Melbourne, AUS
Auckland, NZ – Christchurch, NZ
Research/Study Involvement:
Member of Denver Galaxy Consortium
Advisor for graduate-level thesis program
BGAP Stanford Study
Prepare Study
National Institutes of Health
Donated more than thousands of dollars to fund further research on XXY
Doctor and Clinic In-Person Meetings:
Extraordinary Kids Clinic Denver, Colorado
Boston University
Lurie Hospital, Klinefelter Clinic
Mass-Genn
Weill-Cornell
Harvard University
Boston Children’s Hospital
Boston College
Redefining what support looks like for our community:
Created “one-stop” shopping for research articles relating to XXY
Created a community for newly diagnosed mothers with babies in utero by providing them with real-time connection to parents who have experienced similar situations/challenges
Provide ongoing leadership/engagement opportunities for boys and men with XXY, parents, and professionals.
Overall Reach and Unique Accomplishments:
Over 2 million views on YouTube
We saved over 1000 babies from termination
Community reach in over 40 countries
Podcast with over 50,000 listens
Over 40,000 followers on social media platforms