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From Our Founder

Welcome Back to the Living with XXY Newsletter!

Thank you all for your continued support as I take time to focus on self-care, during an especially busy time of year. I have always tried to openly share my experiences with the community-and this time was no different. Yes, sharing about mental health is vulnerable. But that vulnerability brings support, new ideas, and a sense of connectedness. No matter what we are facing, we are not alone.

As I reflect on the last year, I’m proud of all we have accomplished, the connections we’ve made, and most importantly our community. Thank you all for an amazing 2023 and I look forward to continuing this important work in 2024.

Wishing you all a happy and healthy New Year!

-Ryan Bregante

In This Issue:

COMMUNITY NEWS

MAKING AN IMPACT

MATCHING GRANT UPDATES

LOOKING BACK TO LOOK AHEAD

RESEARCH CORNER

STAY CONNECTED

Community News

We are excited to announce that a talented writer has joined us to resume our blog stories! We know that blogs are an important way to share the voices of our community. We also know many of you have been waiting a long time for this opportunity. Carrie is already working her way through our list, so please be on the lookout for a connection. Thank you for your patience as we worked to find the perfect fit for our community! Welcome Carrie!

Hi, I’m Carrie, a freelance writer based in Northern California. My expertise is writing about infertility and the many tangents that radiate from that experience. My trademark is vulnerable and authentic writing.

My days start with coffee and bird watching and end with cooking delicious meals. In between I write, drink tea, and snuggle with my dogs. I adore learning about others and how their stories shaped the lives they live. I’m on Instagram @bloomingwithcare and share my day-to-day thoughts, ask silly questions and love connecting with others.

Making an Impact

Nucleus Medical Media (https://www.nucleusmedicalmedia.com) is a distinguished creator of medical illustrations worldwide, reaching millions each month online, in print, and in broadcasting. Their mission to help people by improving health literacy is exemplified by recent months of dedicated efforts, producing compassionate and accurate illustrations that authentically portray the spectrum of this community.

Since our first contact about one of the inaccurate, worst-case scenario images we have all grown too accustomed to seeing online; Nucleus committed their time and resources, free of charge, to act as catalysts for positive change and education for our community

From their co-founder Mr. Ron Collins, to their talented senior medical illustrator and writer, Mrs. Leslie Leonard, they immediately understood our concerns and worked diligently to not only remove the inaccurate image but worked to create illustrations that reflect our diverse community. And it didn't stop there - together we also incorporated updated studies and data into the supporting text. This provides valuable assistance by addressing challenges with solutions and, for the first time, emphasizes the community's strengths and positive traits.

Many thanks to our dedicated team, including Dr. Shanlee Davis, Jennifer Voige, and Ryan, who with Leslie, collaborated tirelessly to establish the "gold standard" of illustrations. This benchmark will guide our discussions with other illustrators and the medical community to hold them accountable for accurately reflecting our community.

Nucleus' comprehensive illustrations will save lives, give peace to new parents and families, and empower males living with XXY. Thank you Nucleus for illuminating a path to reshape how the world perceives XXY.

"We hope the Klinefelter community is successful in its mission to change misconceptions of XXY patients, as you did with our team" - Ron Collins, Co-Founder Nucleus Medical Media

"Excited to share these illustrations as a beacon of positive change for Klinefelter awareness!" - Nucleus Medical Media Announcement

2023 Matching Grant Updates

We’ve spent the last few months inching slowly towards a fundraising goal of $30,000. If we raise $30,000, we will receive a generous $30,000 matching donation! Our total as of today, our total is $28,061.92. We are SO CLOSE!

Because of your generous donations, Living with XXY will be able to continue the work of sharing the way the world learns about Klinefelter syndrome. On behalf of future pregnant mothers seeking support; newly diagnosed kids and adults; caring friends and partners; compassionate professionals and the Living with XXY team——THANK YOU!

Online Donations:

Website

Facebook Link

Mail a Check:

Living With XXY

3960 West Point Loma Blvd #H240

San Diego, CA 92110

Need help with a donation? Questions about workplace giving? Want to start a fundraiser? Connect with us:

Looking Back to Look Ahead

We have had a productive, impactful, and BUSY 2023! As we look forward to expanding our reach on behalf of our community in 2024, we want to share a snapshot of some 2023 highlights!

Research Corner

We’ve learned about two new research studies that involve our community. If you learn of any research that could benefit our community, please share it with us!