1 in 500 men are born with Klinefelter syndrome/47 XXY, only 35% will receive a diagnosis.

Living with XXY is changing the way the world learns about Klinefelter syndrome/47 XXY. Focusing on community, awareness, and positive traits.

WHAT ARE THE CHALLENGES WE FACE?

Between 1-400 to 1-650– Males are born with Klinefelter syndrome. Only 35% will be diagnosed at some point in their lifetime, 75% will never know.
Google Search– Information is very negative and only talks about health related issues and educational problems. Lacking positive information.
Old Images– Photos are way past their prime and depict a very small part of the spectrum.
Spectrum– Little understanding on the degrees of variance.
Lack of Research– Insufficient number of clinical trials and knowledge on what to study.
Lacking Medical Knowledge– Very few doctors and medical teams understand our condition.
Educational Tools– Limited resources to help kids and adults with learning and how their brain functions.

TOOLS TO OVERCOME THE CHALLENGES.

As an organization, Living with XXY models the way for our community to influence change. We are workig together to provide awareness through personal connections, reinforce positivity and influence change through strategic partnerships. Please Click Icons to learn more about some of these tools below:

INFERTILITY

Having Klinefelter syndrome does not mean your hopes of fatherhood or parenting are impossible to achieve.

YOUTUBE

Using video to help educate people on how to best advocate for themselves, on such topics as, improving social skills, testosterone and dealing with depression & anxiety.

EARLY INTERVENTION SERVICES

Through personal connections from different generations, we can ensure that people learn how to overcome challenges they may face by listening to others experiences.

PODCAST

Through personal connections from different generations, we can ensure that people learn how to overcome challenges they may face by listening to others experiences.