1 in 500 men are born with Klinefelter syndrome/47 XXY, only 35% will receive a diagnosis.
Living with XXY is changing the way the world learns about Klinefelter syndrome/47 XXY. Focusing on community, awareness, and positive traits.
WHAT ARE THE CHALLENGES WE FACE?
- Between 1-400 to 1-650– Males are born with Klinefelter syndrome. Only 35% will be diagnosed at some point in their lifetime, 75% will never know.
Google Search– Information is very negative and only talks about health related issues and educational problems. Lacking positive information.
Old Images– Photos are way past their prime and depict a very small part of the spectrum.
Spectrum– Little understanding on the degrees of variance.
Lack of Research– Insufficient number of clinical trials and knowledge on what to study.
Lacking Medical Knowledge– Very few doctors and medical teams understand our condition.
Educational Tools– Limited resources to help kids and adults with learning and how their brain functions.
TOOLS TO OVERCOME THE CHALLENGES.
As an organization, Living with XXY models the way for our community to influence change. We are workig together to provide awareness through personal connections, reinforce positivity and influence change through strategic partnerships. Please Click Icons to learn more about some of these tools below:
Having Klinefelter syndrome does not mean your hopes of fatherhood or parenting are impossible to achieve.
Using video to help educate people on how to best advocate for themselves, on such topics as, improving social skills, testosterone and dealing with depression & anxiety.
Through personal connections from different generations, we can ensure that people learn how to overcome challenges they may face by listening to others experiences.
Through personal connections from different generations, we can ensure that people learn how to overcome challenges they may face by listening to others experiences.
Here is a collection of research papers written on Klinefelter Syndrome. We have put all papers we could find in one place for you to access easily.
Discovering Diagnosis Klinefelter Outline
Klinefelter outline I want to start by noting here that I am not a doctor, but have an Anatomy/ Physiology degree (from forever ago),
Common Questions About XXY
Answered by Shanlee Davis, Pediatric Endocrinologist What is Klinefelter Syndrome? Klinefelter syndrome is a genetic condition in boys and men who have an extra
Raising a son with Klinefelter syndrome
Original Article from Healthy Male My husband and I have been together since we were teens and we had our first son Ayden when
Josh Lutz’s Klinefelter Syndrome Diagnosis
Josh Lutz’s Adult Diagnosis of Klinefelter Syndrome Josh received his diagnosis of XXY when trying to become a father. Initially, while it was a
Hello, I Am Brian Winters
Hello, I’m Brian. I’m 36 years old, and I have Klinefelter Syndrome. I’ve been following Living With XXY for about a year now. Since
I Feel Alone In The UK With My Son’s Diagnosis
Giusy is the mother of an incredible three-year-old boy named Mickey. Originally from Italy, Giusy and Mickey live in the United Kingdom. After undergoing